evokecast - #128 与帕金森病赛跑:教练拉里·戈尔迪与苏·戈尔迪医生对话 封面

#128 与帕金森病赛跑:教练拉里·戈尔迪与苏·戈尔迪医生对话

#128 Racing Forward with Parkinson’s: Coach Larry Goldie Talks with Dr. Sue Goldie

本集简介

加入教练拉里·戈尔迪,与苏·戈尔迪博士进行对话。苏是一名铁人三项运动员、哈佛大学教授和公共卫生研究员。2021年,苏被诊断出患有帕金森病。自确诊以来,她继续参加铁人三项比赛,同时坚持学术与研究事业,并积极提高公众对帕金森病患者群体的认知。 如需提交您的训练问题,或想了解更多关于Evoke Endurance社群的信息,请通过以下方式联系我们: 了解更多关于苏的信息,请参见下方链接: 苏正在与戴维斯·芬尼基金会合作开展教育项目 - https://davisphinneyfoundation.org/ 《纽约时报》关于苏的文章:https://www.nytimes.com/interactive/2025/10/13/us/sue-goldie-parkinsons.html?unlocked_article_code=1.2U8.Fsoa.l7nSqV4lLyrR&smid=url-share 苏的个人简介:https://hsph.harvard.edu/profile/sue-goldie/ GHELI(全球健康教育学习孵化器):https://gheli.harvard.edu/ CHDS(健康决策科学中心):https://chds.hsph.harvard.edu/ NPR对约翰·布兰奇的采访:https://www.npr.org/2025/10/18/nx-s1-5575741/for-four-years-she-hid-her-parkinsons-diagnosis-then-she-let-a-reporter-follow-her-journey 节目指南 00:00:00 引言 00:04:02 苏在耐力运动中的早期经历 00:19:57 苏的帕金森病诊断 00:24:44 帕金森病确诊后的训练调整 00:29:14 学习与帕金森病一起训练 00:36:08 为预防受伤而训练 00:39:08 训练期间追踪药物疗效 00:43:02 苏在比赛转换中的独特挑战 00:48:17 如何在繁忙生活中安排训练的建议 00:54:44 苏与教练的合作 01:01:34 比赛经历与拥抱“痛苦之洞” 01:10:44 面对危险及其带来的生活启示 01:11:44 对帕金森病更广泛的理解及苏的未来计划 01:19:05 苏的下一步计划

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大家好,欢迎收听本期的《Evokecast》。

Hello, and welcome to another episode of the Evokecast.

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我是拉里·戈尔迪,今天由我担任主持人。

My name is Larry Goldie, and I'll be your host today.

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今天的嘉宾是医生。

And today's guest is Doctor.

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苏·J。

Sue J.

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戈尔迪。

Goldie.

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苏是一名医生,也是一位公共卫生科学家,致力于改善全球弱势群体的健康状况。

Sue is a physician and public health scientist who works to improve the health of vulnerable populations across the globe.

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她在哈佛大学T.担任讲席教授。

She holds an endowed chair at the Harvard T.

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H.

H.

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她任职于哈佛大学陈曾熙公共卫生学院,同时领导两个跨机构项目:一个是全校范围的健康决策科学中心,另一个是全校跨院系的全球健康教育与学习孵化器。

Chan School of Public Health and directs both the Center for Health Decision Science, a school wide research center, as well as the Global Health Education and Learning Incubator, a university wide inter faculty initiative.

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她的研究影响了临床指南的制定,为公共卫生政策提供了依据,并指导了全球多个国家的优先事项设定。

Her research has shaped clinical guidelines, informed health policy, and guided priority setting in countries around the world.

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她将决策科学创新性地应用于公共卫生领域,因此荣获麦克阿瑟天才奖,并当选为美国国家科学院院士。

Her groundbreaking use of decision science in public health has earned her a MacArthur Genius Award, as well as election to the National Academy of Sciences.

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她曾担任多个领导职务,其中最引人注目的是哈佛全球健康研究所的创始主任。

She has held several leadership positions, the most notable of which was the founding director of the Harvard Global Health Institute.

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在那里,她推动了跨部门协作,在《柳叶刀》健康投资委员会等重大全球倡议中发挥了关键作用。

There, she catalyzed cross sector collaboration, playing a key role in major global initiatives such as the Lancet Commission on Investing in Health.

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作为大学里最具创新精神的教育者之一,Sue同时教授本科生和研究生课程,并获得了十余项教学与指导方面的奖项。

Recognized as one of the most innovative educators at the university, Sue teaches both at the undergraduate and graduate level and has received more than a dozen awards for teaching and mentorship.

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她开创了多媒体教育和非正式学习空间设计的新方法。

She has pioneered novel approaches to educational multimedia and the design of informal learning spaces.

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2021年,Sue被诊断出患有帕金森病。

In 2021, Sue was diagnosed with Parkinson's disease.

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她面对诊断的个人与科研历程,成为2025年《纽约时报》普利策奖得主记者约翰·布兰奇专访的主题。

Her personal and scientific journey through the diagnosis became the focus of a 2025 New York Times profile by Pulitzer Prize winning journalist John Branch.

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他通过长达两年半的深入访谈和对她的个人视频日记的全面接触,记录了这段经历。

He followed her for over two and a half years through extensive interviews and access to her personal video journals.

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我们会在节目笔记里附上这篇文章的链接。

We'll put a link to that article in the show notes.

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自确诊以来,苏一直重新定义着坚韧的意义。

Since her diagnosis, Sue has continued to redefine resilience.

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她完成了多项长距离铁人三项赛事,包括在纽约拉克瓦纳湖举行的铁人三项,过去几年还完成了十多次70.3铁人三项,每年完成两到四场。

She's completed multiple long distance triathlons, including an Ironman in Lake Placid, New York, and over 10 Ironman seventy point three races over the last several years, completing between two and four races each year.

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她现在打算利用自己作为医生、公共卫生专家和教育者的身份,将重心转向帕金森病领域,强调运动在控制症状和延缓病情进展中的关键作用。

She now plans to leverage her position as a physician, public health expert, and educator and apply it to the world of Parkinson's disease with a focus on the crucial role of exercise in managing the symptoms and progression of the disease.

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为了坦诚说明,我得说,苏也是我人生中最敬佩的人之一。

And in the essence of full disclosure, I should say that Sue is also one of my greatest heroes in life.

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她为这个世界付出的,远远多于她所索取的。

She is the model for giving to this world far more than she takes.

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苏也是我的亲姐姐。

Sue is also my big sister.

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苏,欢迎来到节目。

Sue, welcome to the show.

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谢谢你,拉里。

Thank you, Larry.

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介绍得挺长的。

That was a long introduction.

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咱们开始吧。

Let's get started.

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刚才那段

That was a

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介绍有点长。

long introduction.

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我觉得让大家稍微了解一下背景,知道你是谁,以及我为什么这么兴奋能邀请你来节目,这点很重要。

I think it's important that people kind of just have a little bit of a background and understand a little bit about who you are and why I was so excited to have you on the show.

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听你的介绍,感觉你是一位成就非凡的教育者,但你也同样是一位非常出色的运动员。

Because listening to that bio, come across as this amazingly accomplished educator, but you are also an incredibly accomplished athlete.

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所以今天我想把这两方面结合起来,跟你聊聊你作为耐力运动员的生活。

And so I wanted to sort of blend those two together today and chat a little bit about your life as an endurance athlete as well.

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谢谢。

Well, thank you.

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我很兴奋能来到这里。

I am psyched to be here.

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对。

Yeah.

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所以我想我们可以从这儿开始聊,你和我一起在山区待过一段时间,包括在北喀斯喀特山脉,

So I thought one place we could start was you and I have spent some time in the mountains together, both here in the North Cascades,

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还有

as well

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我们一起爬过乞力马扎罗山。

as we climbed Kilimanjaro together.

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但我一开始并没有特别被山地耐力运动吸引。

But weren't really drawn toward mountain endurance sports.

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所以你能说说,你是怎么接触到耐力运动的?又是怎么走进铁人三项世界的?

So tell me a little bit about how you became introduced to endurance sports and how you found your way to the world of triathlon.

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好的。

Okay.

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嗯,不知道你们是听这个播客还是在看视频,但拉里现在正冲我偷笑呢。

Well, I yes, I don't know if you guys are listening to this podcast or you might be watching it, but Larry is smirking at me right now.

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这是因为我们第一次一起爬乞力马扎罗山,其实是因为我急着找他——我的起搏器电池没电了。

That is because our first endeavor together when we climbed Kilimanjaro was basically because I called him desperate that my pacemaker generator had died.

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我当时真担心自己得在山上被人救下来。

And I thought that I might need a personal rescue off the mountain.

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所以那次登山的真正原因就是这个。

So that was the reason for our climbing.

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而我们第一次去野外,花在下山上的时间比登顶还长,因为我膝盖受伤了。

And our first backcountry trip, we spent way more hours getting off the mountain with a knee injury.

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我记得当时我们正想办法让我从悬崖上下来,我跟你说:我玩得真开心。

And I remember declaring to you as we were trying to get me down a cliff, I am having so much fun.

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你当时冲我喊:这可是严肃的情况。

You kind of yelled at me and said, This is a serious situation.

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但我觉得自己爱上山的原因,主要是我带的东西实在太多了,Larry。

But the main reason I think the mountains is that I just carry too much, Larry.

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我总是带着好几个包。

I always have multiple bags.

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我从来就不是个轻装出行的人。

I'm just not a light traveler.

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这在铁人三项的换项环节也给我添了不少麻烦,后面你会听到的。

It's been a problem in transitions and triathlon too, which we'll hear about.

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那我是怎么开始接触耐力运动的呢?

But how did I get started in endurance sports?

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说实话,完全是机缘巧合。

To be honest with you, it was a little bit by serendipity.

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我当时59岁,已经不舒服好几年了。

I was 59 years old and I hadn't been feeling well for a couple of years.

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我以为是几年前得过的一场重病留下的后遗症,但其实也不确定到底怎么回事。

I thought it was from a really serious illness I had several years prior, but I really wasn't sure what was going on.

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但我的大儿子雅各布,正在为拉克普拉西德的全程铁人三项做训练。

But my son, my older son, Jacob, was training for a full Ironman, Lake Placid.

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我对整个训练过程特别感兴趣。

And I was kind of intrigued at the whole training.

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我特别惊讶他居然能这么慢、这么有节奏地练。

I was just super intrigued at how slow he would go, how paced it would be.

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我以前真没见过这样的训练方式。

It was just like I've never really seen training like that.

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于是我想,送他一个在拉克普拉西德的训练营作为礼物,这主意不错。

And so, I thought it would be a great idea to get him a present of a training camp in Lake Placid.

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我完全不懂这些,就上网报了个训练营,给他注册了,还告诉他我会陪他一起去,当个惊喜。

So, having no idea what I was doing, I went online, signed a training camp, signed him up, and told him that I was going go with him as a present.

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但我自己住酒店。

But I would stay in a hotel.

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我不会去打扰他。

I wouldn't bother him.

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我提前打了电话订房。

Dial ahead.

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雅各布在训练营里。

Jacob's at the training camp.

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他一整年都在训练。

He's trained all year.

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他从游泳训练中抬头,望向树边,悄悄观察开放水域游泳的指导课,神情着迷。

Looks up from his training in the swim in a tree and trying to be discreet, fascinated watching the open water swim clinic.

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我有点不好意思地挥了挥手。

I kind of sheepishly waved.

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说到底,我完全被这三项运动吸引住了,看着每个人,感觉大家都觉得自己哪儿都不够好。

But the bottom line is I was just so fascinated with all three sports and watching everyone and everyone seemed to feel like they weren't good at something.

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所以,感觉每个人都有自己的难关。

And so, it just seemed like everyone had a challenge.

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然后我看了杰克和亚伦的比赛。

And then I watched Jake compete with Aaron.

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就像亚伦说的,那是我丈夫,亚伦。

And as Aaron would say, we watched that's my husband, Aaron.

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我们看了好几个小时。

We watched for many hours.

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我完全被这些人的故事吸引住了,看着大家以各种方式挣扎着向前迈进。

I was so swept up in the people story and just sort of watching people struggle and fight their way forward in so many different ways.

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所以我特别被它吸引。

So, I was just super drawn to it.

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后来有一天,秋天过后,我和杰克开车去练游泳,我只是想去陪陪他。

And then it all changed one day after the fall when Jacob and I were driving for a practice swim and I was just going to accompany him.

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我就说,其实我对这项运动挺感兴趣的。

And I said, You know, I'm interested in doing this.

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我在想,我能不能也试试看。

I wonder if I could do this.

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我当时就说,要是现在能找着一件泳衣,我就跳进水里,试着游一游。

And I said, If I could find a bathing suit right now, I'm going to jump in the water and I'm going to try to swim.

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我已经有三十年没游过泳了,那时候是凌晨四点四十五分,在波士顿郊区。

It's been like thirty years since I swam and it was 04:45 in the suburbs of Boston.

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所以,哪儿都关门了。

So, nothing's open.

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但他一直在忙活。

But he is scamming around.

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他用手机搜了一下,说一定要找家开门的店。

He Googled on his phone and he's going to find a place.

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两分钟不到,我们就找到了一家店。

And two minutes of, we find a store.

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我们敲着店里的玻璃窗。

We're tapping on the window.

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我们买了一套男士铁人三项服,就当是我的泳衣了。

We buy a man's triathlon outfit, which is going to be my swimsuit.

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我们去了湖边。

We go to the lake.

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我直接跳了进去。

I jump in.

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我游了大概一百五十码。

I swim like 150 yards.

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他在岸上喊:你真做到了!

He's yelling, You're doing it.

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你真做到了!

You're doing it.

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我上了岸。

I get out.

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冷得直打哆嗦。

I'm freezing.

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我跑到边上吐了。

I vomit on the side.

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我对自己特别满意。

And I was so proud of myself.

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我简直不敢相信。

I could not believe it.

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我 literally 等他游完,回家就直奔厨房,对我老公亚伦说:

And I literally waited for him to finish his swim and I went home and I went right into the kitchen and I said, Aaron, that's my husband.

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我要去参加铁人三项。

I am going to do an Ironman.

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他说:你不会游泳,也不会骑车,更不会跑步。

He said, You do not swim, bike, or run.

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我说:我就要这么做。

I said, I'm going to do it.

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那天晚上吃晚饭时,我打开电脑,说:好,现在我就下单买辆自行车。

And that night at dinner, I pulled up my computer and I said, Now, I'm going to order a bike.

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他说:‘你不能网上买自行车。’

He said, You can't order a bike.

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事实上,上一次我和他一起骑车,也是我最后一次骑车,那已经是三十多年前,我刚和亚伦约会的时候。

And in fact, the last time we had been biking together and I had biked was more than thirty years ago when I was dating Aaron.

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他发誓,经历过跟我一起骑车的事之后,这辈子再也不会靠近我骑车了。

And he swore he would never, after his experience of biking with me, ever get on a bike anywhere near me for the rest of his life.

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虽然我根本不懂该怎么骑,但我骨子里就是好胜。

Even though I didn't really know what I was doing, I was competitive.

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已经过去三十年了。

It had been thirty years.

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所以他一直跟我说:‘你不能网上买。’

So, he kept saying to me, You can't order it online.

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你不能在网上买。

You can't order online.

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但我一直按着按钮,直接把自行车下了单。

And I kept pushing the button and just ordering a bike.

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所以我订了一辆红色的。

So, I ordered a red one.

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我还订了一辆蓝色的。

I ordered a blue one.

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总之,简短说吧,最后只能退回去。

Anyway, long story short, of course, had to return them.

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我得去好好量身定做一辆自行车。

I had to get fit for a bike properly.

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但说实话,从那周开始,我就再也没停下过训练。

But to be honest with you, from that week, I never stopped training.

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明白了。

Okay.

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那这个是?

And so here is this?

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2019年?

2019?

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是的,那是2019年。

Yes, that's 2019.

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明白了。

Okay.

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而且你之前完全没接触过游泳。

And you had zero background in swimming.

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不过你当过救生员。

Well, you were a lifeguard.

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我当救生员的时候根本不用做什么事。

I was a lifeguard where you didn't really have to do anything.

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只要对每个人笑笑就行了。

You just had to smile at everyone.

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我差点都没通过考试。

I barely passed the test.

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所以说实话,我以前根本没怎么游过泳、跑过步或者骑过车。

So, no, I hadn't really ever really swam, ran, or biked.

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你之前有运动方面的背景吗?

Did you have any sort of background in athletics?

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有的。

I did.

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我练的是跆拳道。

Sport of choice was Taekwondo.

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我是个武术练习者,从高中到大学,再到医学院,一直认真训练,参加比赛,也教过别人。

I was martial artist and trained really seriously throughout high school, college, medical school, competed, taught.

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但就算在跆拳道里,我们也只是跑一英里左右来保持体能,再没别的了。

But even in Taekwondo, we did a little bit of running, like a mile, like a mile sprint to stay in shape, but nothing more than that.

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是的。

Yeah.

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所以,你确实没有耐力型运动的基础,但我敢说,跆拳道让你养成了很强的自律,这种习惯也延续到了后来的训练中。

So yeah, no endurance athletic background, but I would bet Taekwondo instilled a lot of discipline in you that you took into the rest of your training.

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那当然。

That is for sure.

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是的。

Yes.

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毫无疑问。

No question about it.

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那你跟我讲讲,刚开始训练那几年是什么样子的?

So tell me a little bit about what those first couple of years of training looked like.

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你是什么时候决定找教练的?之后又是怎么一步步发展起来的?

At what point did you decide to get a coach and how did things progress?

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说实话,我当时对这项运动一无所知,只是觉得特别有意思。

I mean, I was incredibly uninformed because I didn't know anything about the sport except that I was totally intrigued by it.

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于是我上网搜教练,结果偶然间找到了。

And I went online and I looked at for some coaches and actually I stumbled.

Speaker 1

杰夫不喜欢我讲这个故事,但我当时无意中发现了杰弗里·卡波比安科,他就是我的教练,从2019年秋天开始带我,也就是杰克比赛结束后,我正式踏入铁人三项的世界。

Jeff doesn't like when I tell this story, but I stumbled on Jeffrey Jeffrey Capobianco, who is my coach and has been my coach since 2019 when in the fall after Jake finished, I declared my entry into the world of triathlon.

Speaker 1

我当时在看他的网站。

I was looking at his website.

Speaker 1

他是Breakthrough Performance Coaching的老板。

He is the owner of Breakthrough Performance Coaching.

Speaker 1

他自己就是顶尖运动员,却特别谦逊。

He's an elite athlete himself, humble as could be.

Speaker 1

你跟他聊天根本看不出来,但他已经完成过好几次铁人三项赛。

You would never know by talking to him, but he's completed multiple, multiple Ironman.

Speaker 1

他好几次 qualify 去科纳,也真的去比过好几次。

He's qualified for Kona multiple times and has done that race multiple times.

Speaker 1

他带过很多顶尖运动员,我也不明白自己为啥会注意到他的网站。

He trains a lot of elite athletes, so I'm not sure why I was drawn to his website.

Speaker 1

但主要是因为网站角落有个弹窗,会显示你的头像,然后问‘我能怎么帮你?’

But mostly it was because he had one of those things like in the corner of the web where it pops up with your face and it says, How can I help you?

Speaker 1

我不记得那叫什么名字。

I don't know what they're called.

Speaker 1

我当时就想,他好像真的挺关心客户的。

And I was like, Oh, he seems so interested.

Speaker 1

他通过某种网络摄像头看着我,我打字告诉他说:我59岁了,没有任何背景,也没有经验。

He's looking at me through some kind of webcam and I type into the little box, I'm 59 years old and I have no background and no experience.

Speaker 1

我想成为一名铁人三项运动员,完成全程铁人三项,结果发现他根本没回我,反而是那个自动回复在回我:很高兴为您服务。

I'm interested in being a triathlete and doing a full Ironman and realizing he's not writing back to me but that little automatic thing is writing back like happy to help you.

Speaker 1

他看起来特别想跟我聊聊。

He seemed quite eager to talk to me.

Speaker 1

于是我们通过电话跟进,约好在星巴克见面,开始了我们的第一次会面。

And so, we followed up with a phone call and we agreed to meet at a Starbucks and we had our first meeting.

Speaker 1

我到星巴克的时候,带了好几张索引卡片,准备得满满当当。

So, I get to the Starbucks and I come prepared with multiple index cards.

Speaker 1

我们坐下来。

And we sit down.

Speaker 1

杰夫是一名消防员兼急救员,有三个孩子。

Jeff is a firefighter and a paramedic, father of three.

Speaker 1

我们一聊起来就特别投缘,随便聊了聊。

We hit it off right away, talking a little bit informally.

Speaker 1

一点经验都没有。

Experience at all.

Speaker 1

我特别坦诚。

I was incredibly honest.

Speaker 1

我把杰克的故事、树的故事,全都告诉了他。

I told him the Jake story, the Tree story, the whole bit.

Speaker 1

他问我平时都在做些什么。

He asked me what I was doing.

Speaker 1

我说,我能跑两英里。

I said, I can run two miles.

Speaker 1

我能骑十英里自行车。

I can bike 10 miles.

Speaker 1

到目前为止,我每次游泳最多只能游十分钟。

So far, I've only been swimming for ten minutes at a time.

Speaker 1

他问:那些索引卡片是干什么用的?

And he said, What are those index cards?

Speaker 1

我说,这些是我报名参加的比赛。

I said, These are the races that I've signed up for.

Speaker 1

我报了五个完整的铁人三项比赛。

I've signed up for five full Ironman races.

Speaker 0

就在接下来的一年里。

In the following year.

Speaker 0

他正盯着那些卡片看。

He's looking at the cards.

Speaker 1

其实我觉得我根本没注册,只是把所有信息都写在卡片上了。

And I actually think I didn't register, but I had them on the cards with all the information.

Speaker 1

他说,让我看看。

And he said, Let's see.

Speaker 1

他把卡片放下,然后说:咱们先退一步说。

He kind of puts them down and gives me the like, Let's back up a little bit.

Speaker 1

他跟我聊了什么是主力赛,建议我从短一点的比赛开始,循序渐进,还谈了训练计划。

And he talked to me about an A race and talked about starting with a small race and then building my way up and how we would train.

Speaker 1

我唯一提出不同意见的是,我说我想为秋季训练。

The only thing I pushed back on is I said, I want to train for the fall.

Speaker 1

于是我们就开始了。

And so, we got started.

Speaker 1

我刚开始那几个月到一年的训练,拉里,我提醒你一下,那正是疫情那年。

I would say my initial several months to a year of training was also, Larry, just to remind you, the year of COVID.

Speaker 1

考虑到我的工作,那两年过得挺复杂的,现在大家都知道我是做什么的了。

It was a complicated two years given my work and now everyone knows what I do.

Speaker 1

那时候教好几门课、管教学中心,特别难,因为一切都转成线上了。

That was a complicated time to be teaching multiple courses and running a teaching center because everything went online.

Speaker 1

工作上我负担很重,但反而因为时间安排特别灵活,腾出了更多时间训练。

I had a really big load at work, but it also freed up a lot of time for training because schedules were really variable.

Speaker 1

说实话,现在回头看,那其实就是在打有氧基础。

Truthfully, it was really about what I know now is called building my aerobic base.

Speaker 1

那时候我管这叫一点点往上爬。

What I called then was inching way up.

Speaker 1

我跟杰夫解释过,从数学角度来说,我是个数学家。

I explained to Jeff that mathematically I am a mathematician.

Speaker 1

我做的是传染病的数学建模。

I do mathematical modeling of infectious diseases.

Speaker 1

我弄了个简单的Excel模型。

I had built a little Excel model.

Speaker 1

只要我能绕着街区跑一圈,然后每天多跑一圈,我说,三年后,就算没有你,我也能跑到目标距离。

If I could run around the block and just do one extra block every single day, I said, In three years, even without you, I'm at the right distance.

Speaker 1

所以我一直觉得,只要坚持下去,只要一直坚持下去。

So, I sort of had this view that if I just kept at it, if I just kept at it.

Speaker 1

说实话,这跟我刚开始跟杰夫训练的第一年特别像。

Truthfully, that really mirrored my first year of training with Jeff.

Speaker 1

进展很慢,但很有条理。

It was slow, methodical.

Speaker 1

当时有很多东西我不懂,是后来慢慢才明白的,这个我们可以稍后聊聊。

There was a lot I didn't really understand that I came to understand over time, and we can talk a little bit about that.

Speaker 1

但我当时完全是个门外汉。

But I was a complete newbie.

Speaker 1

你还记得填那个表格吗?入院评估表。

Remember filling out the form, your intake form.

Speaker 1

不知道你们保险公司有没有这个。

I don't know if you have that in your insurance company.

Speaker 1

我清楚地记得,得一项一项写运动项目,上面还问:你的优势是什么?

And I distinctly remember I had to write each sport and it said, What are your strengths?

Speaker 1

你希望在哪些方面提升?

What do you hope to improve in?

Speaker 1

你的短板是什么?

What are your weaknesses?

Speaker 1

我就写:短板?我一点经验都没有。

And I would write like, weaknesses, I don't have any experience.

Speaker 1

我根本不知道该怎么弄。

I don't know how to do it.

Speaker 1

我所有项目的长处都一样。

My strengths were the same for all of them.

Speaker 1

我态度特别积极。

I have a really positive attitude.

Speaker 1

我特别有毅力。

I'm super determined.

Speaker 0

有这股劲儿,你一定能走得很远。

That'll take you far.

Speaker 0

对。

Yeah.

Speaker 0

而且每个耐力运动员起步时都得先打下扎实的有氧基础。

And that whole idea of every endurance athlete needs to start out by building a huge aerobic base.

Speaker 0

这得靠慢慢增加锻炼时长来实现。

And you get there by progressively increasing the duration of your workout.

Speaker 0

这跟我们训练运动员的原则有很多相通之处,不过说实话,我们还真没遇见过谁说:‘我以前从来没跑过步,但直接去跑了个一百英里的超马。’

So there's so many parallels to our training principals and athletes that we work with, although I don't think we've ever had someone reach out to us who said, Hey, I've never actually run before, but I just went for a 100 mile ultra run.

Speaker 0

你能帮我准备好吗?

Can you get me ready?

Speaker 0

对了,已经三个月了。

By the way, it's been three months.

Speaker 1

我之前就说过,这至少得花我一年,说不定更久。

Well, did say I knew this would take me at least a year, if not more.

Speaker 1

说实话,从那以后我才明白,要练出这种体能得花好几年。

I mean, obviously since then, I realized it takes years to build up that type of fitness.

Speaker 1

但我记得训练八个月左右的时候,杰夫开玩笑说我太较真了,完全照着他的指示来。

But I remember Jeff saying to me about eight months into our training, he was kind of ribbing me for how neurotic I was at following his instructions to a T.

Speaker 1

只要他让我跑6.3英里或者练特定时长,我就一丝不苟地做到精确。

So, if he told me to run 6.3 miles or a certain duration, I did it exactly to that amount.

Speaker 1

他说,我以为你就是那种典型的完美主义者。

And he said, I just figured you're kind of Type A.

Speaker 1

我跟他说,杰夫,不是这么回事。

I'm like, Jeff, it's not that.

Speaker 1

我喘得几乎透不过气来。

It's like I'm gasping for breath.

Speaker 1

每次跑完,我都会立刻坐下,要么打电话让朋友梅丽莎来接我,要么叫个网约车。

The minute I achieved what I did, I would sit down and I would either call my friend Melissa to pick me up or an Uber.

Speaker 1

我的跑步路线之所以固定,就是因为实在太难了。

That's kind of why my runs are exactly where they should be because it was really hard.

Speaker 1

要一点一点熬到这个程度,真的特别吃力。

It was really hard to kind of work my way up.

Speaker 1

你知道的,拉里,我一直在拍视频日记。

As you know, Larry, I keep a video diary.

Speaker 1

所以我有几百段视频,内容都差不多,就三句话。

And so, I have hundreds of videos that basically consist of three lines.

Speaker 1

第一次跑了4.4英里。

First time ever, 4.4 miles.

Speaker 1

第一次跑了6.6英里。

First time ever, 6.6 miles.

Speaker 1

就是一点点慢慢提升。

And just working my way up.

Speaker 1

这些视频特别无聊,但我特别珍惜。

They're incredibly boring, but I treasure them.

Speaker 0

这很好。

That's great.

Speaker 0

好的,现在我想引入一个新的因素。

Okay, so at this point, I just want to throw a new element into the mix.

Speaker 0

在打造有氧基础的过程中,我们会帮助运动员确定他们的有氧阈值,确保训练强度保持在阈值以下。

We, in building that aerobic base, we work with our athletes to determine their aerobic threshold so that they can be training below that aerobic threshold.

Speaker 0

实现这个目标有好几种方法。

And there's a number of ways to do that.

Speaker 0

你可以测量乳酸水平。

You can measure lactate.

Speaker 0

也可以用心率作为替代指标。

You can use heart rate as a proxy.

Speaker 0

你也可以用主观疲劳程度来判断。

You can use relative perceived exertion.

Speaker 0

我们主要靠心率监测设备。

We primarily use heart rate monitors.

Speaker 0

我知道这对你来说又多了一重挑战,因为你从小就有起搏器。

And I know that adds a whole other element for you because from an early age, you've had a pacemaker.

Speaker 1

对。

Right.

Speaker 1

你刚才说...

You just talk a

Speaker 0

能不能聊聊这个,它对你的训练有什么影响?

little bit about that, how that played a role in your training?

Speaker 1

当然可以。

Sure.

Speaker 1

我装了起搏器。

I have a pacemaker.

Speaker 1

我的心脏结构完全正常。

My heart is structurally great.

Speaker 1

心肌没问题,但电信号系统有点异常,我患有窦房结功能障碍,也就是说,没有起搏器的话,我自己的心率太慢了。

The muscle is great, but the electronic system is what's a little bit off, and I have what's called sinus node disease so that my intrinsic rate without a pacemaker is too slow.

Speaker 1

我偶尔还会出现心动过速,心率会突然加快。

I also have some tachycardia, so intermittently will have a rapid heart rate.

Speaker 1

说实话,这对我影响不大,除了刚开始训练的那几年。

To be honest with you, that has really not been an issue except for the initial couple of years of training.

Speaker 1

所以我们得用一套综合的指标,来判断我当时的运动强度。

But what we had to do is to just have a broad set of metrics that we used to guide where I was in terms of threshold.

Speaker 1

我们确实经常参考心率,但也会结合主观疲劳感,看看我实际感受到的心率是多少。

We actually used heart rate a lot, but we'd use rate of perceived exertion and where I would perceive with my heart rate.

Speaker 1

如果我出现心动过速,心率达到一百九十甚至两百,那这个数据就不能用来评估运动状态了。

If I was in a tachyarrhythmia and my heart rate is 190 or 200, we know we can't use that for any kind of data about exercise.

Speaker 1

这时候的心率反映的是完全不同的情况。

That's telling us about something very different.

Speaker 1

我还做过正式的运动测试,和杰夫一起研究过感知疲劳程度和心率之间的关系,即使考虑到起搏器的限制,也把这些和实验室里的正式运动测试结果做了对比。

And I've also done formal exercise testing so that Jeff and I, we worked at correlating different aspects of using rate of perceived exertion and heart rate, even with caveats of the pacemaker, and how that correlated with what we were seeing in formal exercise testing in a laboratory.

Speaker 1

随着体能提升,我们越来越了解我的身体,清楚我在第一区和第二区的具体状态,也能准确把握如何在不同训练中把我维持在目标区间。

As I got more fit and we kind of knew my body and knew where I was in Zone one and Zone two and really had a good sense of how to keep me there when we wanted to do different types of workouts.

Speaker 1

再加上功率输出、耐力维持等其他指标,我们就形成了一套综合仪表盘式的评估方式,把所有数据放在一起看。

Then taking into account different other measures like my Watts and how I was sustaining myself, etc, came into other metrics like a dashboard approach where we're looking at them all together.

Speaker 0

是的。

Yeah.

Speaker 0

很好。

Great.

Speaker 0

明白了。

Okay.

Speaker 0

你是在2021年秋天确诊帕金森病的,对吧?

So it was in the fall of twenty twenty one where you got the diagnosis that you had Parkinson's.

Speaker 0

能说说你是怎么一开始察觉到身体不对劲的?后来又是怎么确诊的?

Can you tell us a little bit about how you first, how you figured out there was something wrong to begin with, and then how they made the diagnosis?

Speaker 0

也许对大多数听众来说,简单介绍一下这种病的背景会很有帮助。

Maybe, I'm sure for most of our listeners, a little bit of a background about the disease would be pretty helpful as well.

Speaker 1

当然。

Sure.

Speaker 1

2021年夏天,我正为人生第一场铁人三项赛做准备。

So in 2021, in the summer, I was getting ready for my very first triathlon.

Speaker 1

我参加了一场70.3距离的比赛,之后还在拉克普拉西德参加了全套铁人三项的训练营。

I did a 70.3 distance race, and then I did training camp in Lake Placid, which was a full Ironman race rehearsal.

Speaker 1

那是我第一次真正尝试超过一百英里的骑行等长距离项目。

So that was the first time I was really doing distances of more than 100 miles of biking, etcetera.

Speaker 1

当时我的决心压倒了一切。

And the determination outweighed everything else.

Speaker 1

我特别有干劲,但随着距离越来越长,身体开始感觉不对劲。

I was so determined, but I wasn't quite feeling right as I got up to the longer distances.

Speaker 1

在那次完整的铁人三项比赛中,不幸的是,我第一次尝试就骑到一百英里左右时被送上了救护车。

And on the full Ironman, unfortunately, on my very first try, I wound up in an ambulance at about 100 miles on the bike.

Speaker 1

我当时体重偏轻,比理想状态还差不少。

I was pretty underweight, relatively underweight for what I ideally would be.

Speaker 1

我们特别担心着凉,所以我没及时脱掉外套。

And we were really worried about the cold, so I didn't shed layers as quickly as I should.

Speaker 1

但不知怎么的,我就突然晕过去了。

But for whatever reason, I passed out.

Speaker 1

比赛结束后,我在日记里写了下来,还录了视频,总觉得哪里不对劲。

And when I was done, I had written in my diary and recorded a video diary of myself, I think something's wrong.

Speaker 1

就是觉得事情不太对。

Like, I just think that something is wrong.

Speaker 1

我感觉整个人都不一样了。

I just felt different.

Speaker 1

几周后,症状悄悄出现,我注意到左手开始不自觉地发抖。

And really, several weeks later, very insidiously, I noticed a left sided tremor in my hand.

Speaker 1

而且我偶尔还会被自己的腿绊住。

And I also noticed that I occasionally would catch my leg.

Speaker 1

我当时没太当回事,就是觉得整个人不对劲。

And I didn't think much of it, but I wasn't feeling myself.

Speaker 1

有一天,我们在Fast Splits骑车,那是我们当地铁人三项店里的室内骑行馆。

One day, we were biking at Fast Splits, which is our indoor ride studio at our local triathlon shop.

Speaker 1

骑完车后我一个人在停车场哭了起来。

I was outside in the parking lot after the ride and I was crying.

Speaker 1

杰夫看到我出去了,就跟出来问我:你还好吗?

Jeff had seen me leave and he came out and said, Are you okay?

Speaker 1

我一下子就崩溃了。

I just totally broke down.

Speaker 1

我对杰夫说:我觉得我脑子出问题了。

I said, Jeff, I think I have something wrong with my brain.

Speaker 1

我觉得我得了神经系统方面的病。

I think I have a neurologic disease.

Speaker 1

我真的很害怕。

I'm terrified.

Speaker 1

我觉得这是一种神经退行性疾病。

I think it's a neurodegenerative disease.

Speaker 1

我当时真的特别害怕。

I was really, really scared.

Speaker 1

那时候我注意到的也就这些了。

That was really the extent of what I was noticing then.

Speaker 1

说来话短,没过多久我就看上了神经科医生。

Long story short, pretty soon I did get in to see a neurologist.

Speaker 1

帕金森病挺特别的,因为它靠临床诊断。

Parkinson's is really interesting because it's a clinical diagnosis.

Speaker 1

也就是说,医生是根据病人的临床表现来确诊的。

What that means is that a doctor uses clinical symptoms to make the diagnosis.

Speaker 1

帕金森病有四个主要的运动症状。

And there are four cardinal motor symptoms of Parkinson's.

Speaker 1

它属于运动障碍,但也会伴随很多跟运动无关的症状。

It's a movement disorder, although there can be a range of symptoms that have nothing to do with movement.

Speaker 1

帕金森病的根本原因,是大脑深处有一群负责产生多巴胺的神经细胞。

Basically, what happens in Parkinson's disease is deep in our brain, we have clusters of cells that produce dopamine.

Speaker 1

多巴胺是一种非常重要的化学信使。

Dopamine is a really important chemical messenger.

Speaker 1

我们的大脑主要是靠细胞之间互相传递信号,再指挥肌肉活动,等等。

What our brain mostly does is cells talk to each other and then talk to your muscles and get them to move, etc.

Speaker 1

一旦某种化学信使供应不足,问题就来了。

So, when you have a chemical messenger and you have a shortage of that chemical messenger, that's a problem.

Speaker 1

帕金森病中,那些产生多巴胺的细胞会逐渐退化。

What happens in Parkinson's is those cells that produce dopamine are the cells that degenerate.

Speaker 1

所以,多巴胺分泌减少,你的运动症状,其实就是由这种多巴胺不足引起的。

And so, you produce less dopamine and your symptoms, your motor symptoms, are due to that shortage of dopamine.

Speaker 1

临床上主要关注的四个症状之一,就是震颤。

And the four symptoms that you look for are one is a tremor.

Speaker 1

通常先从身体一侧开始,之后慢慢波及到另一侧。

Generally, it starts on one side of the body and then eventually goes to the other.

Speaker 1

第二个是肌肉僵硬。

Second is rigidity.

Speaker 1

第三个叫运动迟缓,说白了就是动作变慢。

Third is what's called bradykinesia, which is a fancy way of saying slow movement.

Speaker 1

第四个是平衡和姿势方面的问题。

And fourth is problems with balance and posture.

Speaker 1

这些位于大脑深处的细胞群,负责启动并维持流畅的运动。

And these cells, this cluster of cells deep in the brain, are responsible for initiating and maintaining smooth movement.

Speaker 1

这跟中风不一样,中风要是影响了大脑某个区域,你可能连右胳膊都动不了。

So, it's not like a stroke where I couldn't move my right arm if I had a stroke in a particular part of my brain.

Speaker 1

我身体还是能动的。

I can move my body.

Speaker 1

但动作的流畅度、启动方式,还有抑制和促进运动之间的平衡,都因为多巴胺不足而乱了套。

But the smoothness of that movement, how I initiate that movement and the balance between inhibiting movement and promoting movement is kind of screwed up because of that shortage of dopamine.

Speaker 1

所以确诊的话,至少得有两个这些症状。

So to get the diagnosis, you need to have two of those signs.

Speaker 1

必须有运动迟缓,再加上另外两个症状。

Bradykinesia has to be present and then you have to have two others.

Speaker 1

所以这完全是靠临床判断。

So it was a clinical diagnosis.

Speaker 1

我走进去,没等任何化验结果,走出来的时候就知道确诊了。

So I walked in, didn't have to wait for any lab tests, and I walked out and knew that that was the diagnosis.

Speaker 1

我整个人都垮了。

I was crushed.

Speaker 1

我真的特别崩溃。

I was really crushed.

Speaker 0

我能想象得到。

Can only imagine.

Speaker 0

显然,这并没有让你放弃运动目标。

And so obviously, that did not deter you from pursuing your athletic goals.

Speaker 0

但我很好奇,你的训练方式有因此改变吗?或者你的教练是怎么调整训练计划的?

But I'm wondering, did that change the way that you trained, or how did your coach modify your training in order to do this?

Speaker 0

你跟我解释这些平衡问题的时候,我第一反应就是,骑着自行车在大风天跑一百多英里,要是平衡感受影响,简直太危险了。

The first thing I think about when you explain this to me, having issues with balance, is riding over 100 miles on a bike on windy roads with any kind of impairment to your balance sounds incredibly dangerous.

Speaker 0

那你训练的时候做了哪些调整呢?

What sort of adjustments did you need to make to your training?

Speaker 1

首先,幸运的是,姿势不稳这部分症状在疾病后期才会出现。

Well, first, luckily, the postural part of that four comes much later in the disease.

Speaker 1

我其实并没有真正的平衡问题。

I really didn't have any problems with balance per se.

Speaker 1

我一度以为是右腿拖地造成的,但那其实是运动迟缓,不是平衡问题。

I thought I did with that right dragging leg, but that was actually just the slow bradykinesia.

Speaker 1

就是动作变慢了。

It was slowness of movement.

Speaker 1

帕金森病特别难懂的一点是,就连我作为医生,一开始也不清楚每个症状到底意味着什么,身体会有什么感觉。

One of the really tricky things about Parkinson's is even for me who's a doctor, I didn't understand what each symptom was and how it would feel in my body.

Speaker 1

别人跟你说‘运动迟缓’,你真能明白这代表什么吗?

If someone says you have slowness of movement, what does that mean?

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Speaker 1

你去感受一下。

Feel it.

Speaker 1

看起来我一点也不慢。

It doesn't look like I'm slow.

Speaker 1

我花了好一阵子才明白,这些症状是怎么影响我和杰夫的运动表现的。

It took me a while to understand how each of those symptoms was affecting my athletics, as well as Jeff.

Speaker 1

首先,我得说,杰夫根本没有犹豫。

First and foremost, I have to say Jeff did not hesitate.

Speaker 1

我还没完成那次比赛,你可以想象,从普拉西德回来时我有多执着。

I had not finished the fall and you can only imagine the determination I had on way back from Placid after not finishing the fall.

Speaker 1

我已经跟杰夫说了,咱们两个月后飞去哈萨克斯坦再比一场。

I had already told Jeff, Let's fly to Kazakhstan and do a fall there in two months.

Speaker 1

我决心特别大。

I was so determined.

Speaker 1

他看着我说,这什么都不会改变。

He looked at me and said, This changes nothing.

Speaker 1

我们继续训练。

We continue to train.

Speaker 1

从确诊的那一刻起,他从未动摇过,始终陪在我身边,和我一起坚定前行。

From the moment that the diagnosis was confirmed, I'm sorry, he just really never wavered in that he was going to be adjacent to me and we were going to march forward together.

Speaker 1

于是我们在泛美面包店开了个规划会。

And so, had a planning meeting in a Panera Bread.

Speaker 1

他下班后,我激动得不得了。

He got off shift and I came incredibly excited.

Speaker 1

他说:这确实不一样了。

He was like, This is a change.

Speaker 1

我特别兴奋。

Incredibly excited.

Speaker 1

我当时手上有五十多篇文献。

And I had like 50 manuscripts.

Speaker 1

我一直在研读医学文献,就跟杰夫说:你看,已经有大量早期数据表明,运动,尤其是高强度间歇训练,对帕金森病至关重要,能有效控制症状。

I've been reading the scientific literature and I was like, Jeff, there's all this early data that exercise, in particular intense intervals, exercise is completely key to Parkinson's, that it helps to control the symptoms.

Speaker 1

还有一些早期研究显示,这种高强度间歇训练达到80%强度——不是那种耐力训练的强度——如果你每周做三次,每次四十到五十分钟,甚至可能延缓病情进展,有一定的神经保护作用。

There's even some early data that these intense intervals at 80%, not what we do sort of for endurance training, but these intermittent, if you do forty to fifty minutes three times a week, might even have an impact on progression, a little bit neuroprotective.

Speaker 1

所以,这些研究虽然还只是早期的,但根本无所谓。

So, it didn't matter that these were early studies.

Speaker 1

我不断跟他说:我真是太幸运了。

All of a sudden, I kept saying to him, How lucky am I?

Speaker 1

我这么一个对耐力运动一窍不通的人,因为儿子的关系,阴差阳错地走进了这个领域,遇见了你,还有了教练,现在身体也练好了。

How lucky am I that me, who knows nothing about endurance sports, stumbled into this world by virtue of my son and I met you and I have a coach and I'm fit.

Speaker 1

经过好几年,我终于变得健康了。

I'm finally fit after a couple of years.

Speaker 1

而对我来说,除了吃药之外,控制这种病症状的关键,就是锻炼。

And here, the key to me controlling the symptoms of this disease outside of medication is exercise.

Speaker 1

所以第一年,真正改变的其实只有一件事——他特别希望陪在我身边,而这种事,就算没有帕金森,也迟早会发生。

And so, that first year, really the only changes were about he really wanted me and this would have happened without Parkinson's.

Speaker 1

我开始专注于如何让自己更有韧性,于是去做了物理治疗。

Focused on how I could be more resilient, gaining I went to physical therapy.

Speaker 1

我去看了营养师。

I went to a nutritionist.

Speaker 1

我增重了十磅肌肉。

I put on 10 pounds of muscle.

Speaker 1

我全面地努力让自己变得更健康。

I just really holistically tried to get myself really healthy.

Speaker 1

这给我上了重要的一课。

It was a big lesson for me.

Speaker 1

我决定把那股狂热的执着稍微减一点,就减3%,把这3%用在睡觉、饮食和好好照顾自己上。

It was like, let me trade off 3% of my crazy determination, 3%, and focus that 3% on sleeping, eating, and being sure I'm taking care of myself.

Speaker 1

这就是训练方式的转变。

So, that was the shift in training.

Speaker 1

接下来那年,我带着帕金森病迎来了新的秋季。

And I entered my next fall, the next year with Parkinson's disease.

Speaker 1

我参加了70.3铁人三项。

I did a 70.3.

Speaker 1

我参加了训练营,也完成了秋季比赛。

I did training camp and I did the fall.

Speaker 1

那时候我重了十磅。

And I was 10 pounds heavier.

Speaker 1

但我变得强壮多了。

I was much, much stronger.

Speaker 1

之后的事就不用多说了。

And the rest is history.

Speaker 1

知道我患有这种病,还能做到这些,简直太不可思议了。

It was like an incredible, incredible moment to be able to do that knowing that I had this disease.

Speaker 0

是的。

Yeah.

Speaker 0

对很多人来说,这样已经很不错了。

For And a lot of people, that would be okay.

Speaker 0

我做到了。

I did it.

Speaker 0

我完成了自己的比赛。

I did my race.

Speaker 0

我这些年一直都在训练。

I've trained all these years.

Speaker 0

这其中的成就感是实实在在的。

And there's the accomplishment that comes with that.

Speaker 0

但对你来说,那更像是一个起点,而不是终点。

But for you, it feels a little bit more like that was the gateway as opposed to the summit.

Speaker 0

而且你非但没停下,反而把比赛安排得更密了。

And you've continued, if anything, you've only increased your race schedule.

Speaker 0

去年我很幸运,能帮你参与其中一场比赛。

I was fortunate enough to get to help you with one of those races last year.

Speaker 0

后来你把今年的比赛日程发给我,问我能不能帮着参加哪几场。

And then when you sent me your race schedule for this year, you're like, can you make any of these races?

Speaker 0

我一看,天哪,上面多了整整半打比赛。

I was like, oh my god, there's like half a dozen more races on here.

Speaker 0

所以那第一年之后,你的决心一点都没动摇。

So after that first year, your determination was unfazed.

Speaker 0

但我知道,病情还在继续发展,那段时间你还受了不少伤。

But I know the disease continued to progress, and you struggled through some injuries during that time as well.

Speaker 0

你能聊聊接下来那段时期的情况吗?

You talk a little about that next period of time?

Speaker 1

是的。

Yeah.

Speaker 1

我跑完全程的时候,真的特别特别开心。

I think when I finished the full, I I was so, so happy.

Speaker 1

我记得那天晚上,杰夫送我回酒店,我和亚伦上床后,每半小时就醒一次。

I remember when I went to sleep that night, Jeff walked me back to my hotel and Aaron and I went to bed and I kept waking him up every half hour.

Speaker 1

我一直在说:我简直不敢相信我做到了。

I'm like, I can't believe I did it.

Speaker 1

那一整晚他都被我吵得够呛,第二天累得不行。

All night, he was exhausted by the next day.

Speaker 1

说实话,我们团队在那次比赛中拿到了第二名。

And I'll be honest with you, there was something that my team actually won second place as a team in that event.

Speaker 1

拍照片的时候,所有运动员都在场,他们真的成了支持我的一群人。

We were all posing for this picture and all of the athletes are there and they really became my supportive community.

Speaker 1

VPC队的很多运动员都成了我的好朋友,还有杰夫和他的家人,以及所有队友。

So many of the athletes on the VPC team have become my close friends, Jeff, his family, and all those teammates.

Speaker 1

我感受到自己被一群理解并接纳我的人包围着。

I felt really surrounded by a group that supported me, accepted me.

Speaker 1

我跟他们没什么不同。

I was no different.

Speaker 1

我只是多了一重挑战。

I just had another challenge.

Speaker 1

杰夫在人群中间把奖杯交到我手里。

And Jeff handed me the trophy to hold in the middle of the group.

Speaker 1

我记得那时心里想着,我要带着这群队友继续往前走,感觉特别有支撑。

And I remember feeling I am going to move forward with this little cabinet of teammates and feeling just really supported.

Speaker 1

后来我完成了,和埃琳一起去了一趟马略卡岛。

Now, I finished, Erin and I went to Majorca.

Speaker 1

回来之后,那段时间我明显感觉到症状加重了。

When we got back, that whole period of time, I started to notice really pretty substantially increased symptoms.

Speaker 1

我的震颤变得更严重了。

My tremors were much worse.

Speaker 1

简而言之,我跟神经科医生密切配合,最后不得不加大药量。

And long story short, you know, worked really closely with my neurologist, but had to really start increasing medication.

Speaker 1

这对我说是个很大的挑战。

And that became a really tough challenge for me.

Speaker 1

帕金森病的药物,这次我不细说了,但最关键的就是补充多巴胺的药。

The medication in Parkinson's is I won't use this time to describe some of the challenges, but basically the most important medication you can take is the medication that replaces the dopamine shortage.

Speaker 1

虽然都是同一种药,但身体对它的代谢方式不同,影响它到达大脑的效率。

It's all the same drug, but there are different ways it gets broken down in the body before it gets to the brain where it needs to be.

Speaker 1

有些人会严重恶心。

And some people can have pretty significant nausea.

Speaker 1

我就是这种人。

And I'm one of those people.

Speaker 1

我一直在努力找到平衡:药量要足够控制症状,又不能多到让我呕吐。

I really struggled with getting enough medication into me to control my symptoms, but not having too much so that I would throw up.

Speaker 1

那是一个持续好几个月的艰难过程,我和杰夫不再只关注饮食和补水,而是开始同时调整我的饮食、补水和用药方案。

And that was a tough multi month process where Jeff and I really, instead of only training with nutrition and hydration, we began training with getting my nutrition right, getting my hydration right, and getting my medication right.

Speaker 1

因此,为了完成长距离耐力训练,我必须额外补充药物。

And so, distance endurance training required me to supplement me.

Speaker 1

并不是每个人都会这样。

This isn't the case with everyone.

Speaker 1

帕金森病每个人的情况都不一样,但我确实需要把长效药和短效药搭配使用。

Everyone is very unique in Parkinson's, but I really needed to supplement my long acting medication with short acting.

Speaker 1

找到合适的剂量花了我很多次尝试和调整。

And it was a lot of trial and error to get that dosing right.

Speaker 1

就像你平时会和运动员反复演练比赛时的状态、补给节奏一样,这些事绝不能等到比赛当天才第一次尝试。

So, just like you probably rehearse with your athletes, how are you going to feel yourselves, how often, You can't do that for the first time on the race.

Speaker 1

训练时你得像守规矩一样坚持做。

You need to be doing it religiously in your training.

Speaker 1

我们后来把服药也加进了这份清单里。

We just added medication to that list.

Speaker 1

这就是训练方式发生的一个重要变化。

So, that was one way, one significant way training changed.

Speaker 1

第二个变化是我开始加入物理治疗、力量训练,还有敏捷性和平衡训练。

A second was I really added physical therapy and strength training, agility and balance.

Speaker 1

帕金森病患者有四种训练方式是必须做的。

Parkinson's, there are four different modalities that you really need to do.

Speaker 1

你得做有氧运动。

You need to do aerobics.

Speaker 1

你得做力量训练。

You need to do strength training.

Speaker 1

你得做柔韧性训练,因为身体会僵硬,还得练敏捷性和平衡能力。

You need to do flexibility because of the rigidity that sets in and you need to have agility and balance work.

Speaker 1

而且,所有这四项训练内容都被整合到了我们的日常锻炼中。

And multitasking, all four of those became folded into our workouts.

Speaker 1

我们还得算时间,这也是杰夫觉得我们应该考虑70.3赛事的原因之一。

And we had to look at the hours and that was one of the reasons that one of a few reasons that Jeff felt we should be thinking about 70.3s.

Speaker 1

第三个变化是,某些症状带来的风险——说实话,我参加比赛时从来没受过伤。

The third thing that changed was the risk that some of the symptoms put me at, which to be honest with you, I've had no injuries during a race.

Speaker 1

我的伤都是日常生活中,或者训练时走神造成的。

My injuries come from regular life or when I'm training and I'm not paying attention.

Speaker 1

脚拖地了,我没留意。

A foot drags and I don't pay attention.

Speaker 1

但在比赛中,我始终保持高度专注。

In a race, I'm acutely paying attention.

Speaker 1

我经常在心里默念:别摔倒。

I often have a mantra, Do not fall.

Speaker 1

别摔倒。

Do not fall.

Speaker 1

把腿抬起来。

Lift your leg up.

Speaker 1

所以,这些伤都是在日常生活中发生的,我受过好几次,这让我在坚持训练和康复的过程中遇到了很大挑战。

So, the injuries happened in real life and I've had several, which became a big challenge for me to continue to train through them and to be able to heal from them, etc.

Speaker 1

你知道的,拉里,简单说,2023年我断了几次骨头。

As you know, Larry, in short, in 2023, I had multiple fractures.

Speaker 1

我的锁骨断了。

I fractured my clavicle.

Speaker 1

我的锁骨出现了错位性骨折。

I had a displaced fracture in my clavicle.

Speaker 1

我得承认,下一次骨折是我自己造成的。

Now, I will admit that the next fracture was my fault.

Speaker 1

我用胶带把锁骨绑住,想试着去跑一条越野路线,以为自己可以提前恢复跑步,没想到绑着胳膊固定锁骨反而让我在摔倒时完全没得到保护,结果肋骨也断了。

I duct taped my clavicle so that I could do a trail run and thought I could start running before I should have, and didn't anticipate that by duct taping my arm to my body while protecting my clavicle, I really had very little protection when I tripped and fell, and then I broke some ribs.

Speaker 1

虽然受了这么多伤,但那个夏天我还是重新站起来了,去了训练营。

So, I had a bunch of injuries, but I did pick myself back up that summer and got to training camp.

Speaker 1

杰夫开车送我下基恩陡坡,我勉强骑着车。

Jeff drove me down the major keen descent, and I sort of biked.

Speaker 1

教练们跟在后面护着我,我安全地完成了270.3次训练,这成了我常挂嘴边的笑话。

The coaches helped by trailing me, I did it safely and I managed to complete two seventy point three s, which became my big joke.

Speaker 1

缅因州的奥古斯塔和佐治亚州的奥古斯塔,合起来才算我的完整奥古斯塔。

Augusta, Maine and Augusta, Georgia equal my Augusta full.

Speaker 1

我最终还是做到了。

I was able to do it.

Speaker 1

但幸运的是,第二年我得了眼眶底骨折。

But fortunately, that following year, had an orbital floor fracture.

Speaker 1

再下一年,你知道的,你当时陪着我,我脚踝严重骨折,三块骨头都断了,医生说至少一年别想跑步。

And the following year, as you know, you were with me, I had a really bad last year fracture of my ankle, broke three bones and wasn't expected to be able to run for a year.

Speaker 1

这些困难我们一个个都挺过来了。

So those were challenges that we had to get through.

Speaker 0

是啊。

Well, yeah.

Speaker 0

说真的,伤病是每个运动员面临的最大挑战之一,既要尽量避免,又要能很好地恢复——这也是我们花这么多时间做力量训练的原因,就是为了让自己更结实、更抗造。

I mean, injuries are one of the biggest challenges for any athlete to both come back from well, first to avoid, which is a huge part of why we do so much strength training to make ourselves more durable.

Speaker 0

但除此之外,还会失去训练时间,导致体能下滑,更别说心理上的打击了——当你没法做那些你真正热爱的事情时,那种感觉真的很难熬,复健的过程尤其考验人。

But then the loss of training time and the accompanying fitness that can happen, as well as just what it does mentally to you when you can't take part in these activities that you love to do, trying to come back from these injuries.

Speaker 0

我记得很清楚,你脚骨折的时候我就在你身边。

And I just have to say, I was with you when you broke your foot.

Speaker 0

不过你得纠正我一下时间线:我记得你受伤还不到一周,没听医生的建议,就让你教练来你家,把山地车的踏板装到公路车上,哪怕穿着行走靴,你也能骑上车继续训练。

And correct me on the timing here, but I want to say it was less than a week later, against medical advice, you had your coach come to your house and put a mountain bike pedal on your road bike so that even in a walking boot, you could actually get onto your bike and continue to train.

Speaker 0

是这样吗?

Is that right?

Speaker 1

其实也不完全对。

Well, it's not completely right.

Speaker 1

在去看医生的前两天,也就是受伤后的第二天,我就自己弄了个简易护具,试着骑车了。

So the two days before I went to the surgeon, the day after I did this, I rigged up my own little boot and tried to bike.

Speaker 1

那确实违背了医嘱。

That was definitely against medical advice.

Speaker 1

在我详细解释之后,我的外科医生确实同意了,这没错,而且这也体现了我教练的一个了不起的特质——他总是权衡利弊,因为对于帕金森患者来说,不动的话情况真的会恶化。

I did have the permission of my surgeon after I really explained that, and this is true and this is also a wonderful attribute of my coach it was always a trade off because if you don't move in Parkinson's, you really get worse.

Speaker 1

所以,面对这些伤病,我们得想办法让我继续锻炼。

So we had to find ways that I could still work out with all of these injuries.

Speaker 1

我特别喜欢铁人三项的一点是,总有一项运动我能做,来保持体能。

And one of the things I love about triathlon, I really do, is that there's always a sport that I can do to stay fit.

Speaker 1

比如我脚骨折的时候,游泳是肯定不行了。

And so, for example, when I broke my foot, I could not swim.

Speaker 1

脚上打了好几周的石膏,但在医生严格指导下,我同意了,把石膏和登山鞋的踏板结合起来,装在自行车上,这样还是能完成有氧训练。

Had a cast on for multiple weeks, but I was able and my surgeon, it was with his permission under very strict guidance that I was able to rig a walking boot around a cast into a mountain bike cleat on my bike and be able to get a cardio workout.

Speaker 1

力量训练我也没落下。

I was still able to do strength training.

Speaker 1

物理治疗也一直在做。

I still did physical therapy.

Speaker 1

所以,我确实没闲着。

So, did do a lot.

Speaker 1

我其实第四个月就开始训练了,他们根本没想到我能做到,结果一个月后我就去参赛了。

I was able to start training really at month four, which they never thought was going be possible, I was racing a month after that.

Speaker 1

所以,总能找到办法解决。

So, I think there was a workaround.

Speaker 1

我从来都没有彻底停过。

I'd never really taken time totally off.

Speaker 1

我一直都能保持住体能。

I have always been able to keep that fitness going.

Speaker 1

这得靠平衡。

It's a balance.

Speaker 1

要不是有帕金森病,杰夫肯定早就让我彻底歇着了。

If I didn't have Parkinson's, no question, I think Jeff would have said, Let's just shut this down.

Speaker 1

但问题是,帕金森病患者一旦不动,情况会急剧恶化。

But the trade off is that you really, really get much worse with Parkinson's disease if you don't move.

Speaker 1

所以,关键还是得平衡。

So it was a balance.

Speaker 1

我相信,对所有运动员来说,某种程度上都是如此——无论是身体还是心理健康,都得找到一个现实的平衡。

And I'm sure to some level that's true of all athletes, whether it's a physical and mental health, that you have to achieve some realistic balance.

Speaker 0

所以在我看来,运动和药物之间需要一种平衡。

And so it sounds to me there's a balance between the exercise and the medications.

Speaker 0

我知道吃药挺难的,尤其是当你在运动的时候。

And I know the medications are challenging, especially when you are exercising.

Speaker 0

但根据我们之前的交流,感觉很多患有这种病的人都很难把药量调到刚刚好。

But just from conversations that you and I have had, it sounds like to a degree, many people with this disease really struggle to get the medications just right.

Speaker 0

你觉得你现在能掌控好这个了吗?

And do you feel like that's something you've gotten a handle on now?

Speaker 0

情况稳定下来了吗?

Have things stabilized?

Speaker 0

还是说这仍然是个正在调整的过程?

Or is it still kind of a work in progress?

Speaker 1

我觉得我现在比刚起步的时候好太多了。

I think I'm way, way better than when I initially started.

Speaker 1

我学到了很多。

I've learned a lot.

Speaker 1

我很幸运,有一位非常支持我的神经科医生,她鼓励我做任何想做的事,还帮我安全地尝试各种方法。

I am fortunate to have a great neurologist who is so supportive of me and supportive of me doing whatever I want to do and so willing and encouraging of me to experiment safely.

Speaker 1

她常常觉得我的药量太低,好在我身边有很多人帮我调整。

Often she felt I was on too low of a dose and so I am fortunate to have had a lot of people around me to help me with that.

Speaker 1

我觉得这对帕金森病患者来说是个重要的教训:你必须了解自己的身体。

I and I think this is a big lesson for people with Parkinson's disease is that you do have to know your own body.

Speaker 1

你得弄清楚,怎么判断自己的运动迟缓是不是加重了?

You have to get to know how can I tell where my bradykinesia is worse?

Speaker 1

我有个小办法:把水瓶装四分之一的水,跑步或训练时,把瓶子在左右手之间来回传递。

I have a little trick where I fill a water bottle up a quarter of the way and when I run, when I train, I toss that water bottle back and forth right to left hand.

Speaker 1

首先,如果我动作不协调,那就是药量不够了。

First of all, if I can't coordinate and do I'm under medicated.

Speaker 1

只要听水瓶晃动的声音——如果我用右手跑几步,换到左手再跑,左右手的晃动明显不一样,我就知道药量还不够。

Just by the slosh in the bottle, if I run with it a few strides with my right hand, switch it to my left and run, if that slosh is significantly different left and right, I know I'm under dosed.

Speaker 1

我现在已经有办法很早就察觉到身体对多巴丝肼的反应了。

I have ways now to track way early on how my body reacting to the Dosimon.

Speaker 1

耐力运动和比赛的难点在于,你得补充药物——你可能也有过这种经历:当你连续运动几个小时后,肠胃的运作方式跟早上刚起床吃药时完全不一样。

The tricky part about endurance sports and racing is I supplement and Probably you have this experience too, but once you're out there for several hours, your gut does not work exactly the same way as it does when you're just waking up in the morning and taking a pill.

Speaker 1

帕金森药物的作用机制,我觉得挺有意思的。

The way Parkinson's drug works, I always find this kind of funny.

Speaker 1

药片含在嘴里,感觉大脑好像就在旁边。

You take it in your mouth and the brain seems so close by.

Speaker 1

就算我是医生,也会想:这距离也没多远啊。

Even as a doctor, I'm like, It's not that far.

Speaker 1

直接到那些细胞就好了。

Just get to those cells.

Speaker 1

但药物得先进入胃里,扛住胃酸,再往下走到小肠。

But it's got to go into your stomach, survive the stomach acid, get down to your small intestine.

Speaker 1

然后它只能在小肠的一个特定区域被吸收,而那里也是蛋白质吸收的地方。

Then there's one area that it gets absorbed in the small intestine where also proteins absorb.

Speaker 1

所以,得避开蛋白质。

So, competes.

Speaker 1

因此,你必须确保完全不吃蛋白质。

So, you have to be sure not to have any protein.

Speaker 1

这样药物才能被吸收。

Then it gets absorbed.

Speaker 1

但正如我之前提到的,对某些人来说,药物在到达大脑之前就可能被分解了。

But as I mentioned earlier, in some people, it can break down before it gets to the brain.

Speaker 1

你吃下去的药,最终能穿过血脑屏障、到达神经元并被利用的,其实少得可怜。

There's very little bit of what you ultimately put in your mouth that finally gets across the blood brain barrier to those neurons where it can be used.

Speaker 1

所以我得学会在吸收不好的时候多服一些药,才能确保有足够的药量到达神经细胞。

And so, I've had to learn how to take extra medicine when I'm not absorbing so that I get enough actually to those nerve cells.

Speaker 1

不过说实话,经过多次尝试,我老开玩笑说,我要带着这些发明去参加《鲨鱼坦克》节目,讲讲怎么随身携带多种药物。

But I have to say, after multiple trials, I keep joking that I'm going go on Shark Tank with all of the inventions I have for how to carry your multiple drugs.

Speaker 1

我以前把药放在自行车上的小容器里,跑步时放在装备里,游泳时也随身带着。

I used to put them in little things on my bike and then in my run gear and then by the swim.

Speaker 1

但现在我只带一样东西,上面还标着备用的。

But now I carry one thing that's labeled with backups.

Speaker 1

我试过五六种不同的办法,现在总算摸出门道了。

I've gone through five or six different hacks and I kind of have it nailed now.

Speaker 1

我觉得自己现在做得还不错。

I think I'm doing pretty well.

Speaker 1

说实话,这事儿真不容易。

To be quite blunt, it's tough.

Speaker 1

半夜药效过了,起来上厕所的时候,我总感觉这是在提醒我:我得了这病,神经细胞正在不断死去。

In the middle of the night when medications wear off and you get up to go to the bathroom, I always say it's like a reminder that I have this disease and that my neurons are dying.

Speaker 1

但白天状态好的时候,比起刚发病那会儿,我已经好太多了。

But during the day and when I'm optimized, I'm doing pretty well compared to when I started.

Speaker 0

这让我稍微想到你的药物和换药的过渡问题。

That kind of makes me think a little bit about your medications and transitions.

Speaker 0

在登山运动里,我们也管这叫‘过渡’——比如爬山时停下来装冰爪,或者系上绳索,又或者给滑雪板贴上防滑皮去上坡,再撕下来准备下坡。

And in mountain sports, we call them transitions as well, where when you're climbing a mountain, you'll stop to put on crampons, or you might stop and put the rope on, or you might put your skins on your skis to go uphill or take them off to go downhill.

Speaker 0

每次这样的停顿,我们都叫一次转换。

And each of those breaks we call a transition.

Speaker 0

作为登山向导,你在这些转换上已经非常熟练了吧?

And as a mountain guide, you can I have gotten quite good at those, and I'm really proficient?

Speaker 0

有时候这些转换只需要几分钟。

And they can just be a couple minutes.

Speaker 0

但当我带团时,每次转换我得预留十五到二十分钟甚至更多。

But when I'm guiding, sometimes I have to factor in fifteen or twenty plus minutes for each transition.

Speaker 0

所以在一次越野滑雪日里,如果我们滑三到四趟,光是六到八次转换,每次二十分钟,真正能滑雪的时间就所剩无几了。

And so on a backcountry ski day, if we make three or four runs, suddenly at six or eight transitions times twenty minutes each one, that does not leave a lot of time to actually ski in there.

Speaker 0

我也知道在铁人三项里,转换同样至关重要。

And so I know transition is a huge part of the triathlon world as well.

Speaker 0

我见过你那些小药盒。

And I've seen you with your little medication cases.

Speaker 0

你能简单说说吗

Can you just talk a little bit about

Speaker 1

过渡环节是怎么运作的?为什么它会是这么独特的挑战?

how transitions work why that's such a unique challenge?

Speaker 1

当然。

Sure.

Speaker 1

大家都知道,过渡通常发生在游泳之后,就我参加的70.3赛事来说,你得凌晨三点就起来准备,过渡区一开门就进去。

Everyone knows the transition is usually between after the swim, the general flow of the 70.3, just because that's kind of what I've been racing, is you're getting ready at thirty in the morning, transition opens.

Speaker 1

我总是第一个到那儿。

I'm always the first one there.

Speaker 1

我都想不通,干嘛要花一个半小时来准备过渡区?

It's like, why do you need an hour and a half to get transition ready?

Speaker 1

我总是在闸口那儿,把所有东西都摆好。

I'm always right at the gate to get everything set up.

Speaker 1

我总是很惊讶,别人都在那儿一样样摆装备,就为了能在过渡区花一分钟冲过去。

And I always marvel because everyone is laying out their stuff because they're going to take one minute to get through transition.

Speaker 1

过渡环节对我来说特别困难。

Transitions are really tough for me.

Speaker 1

不过说实话,这几年我的帕金森病加重了,但我一直都不擅长过渡环节。

Now, in full disclosure, my Parkinson's has gotten worse over the few years, but I have always been terrible at transitions.

Speaker 1

我还记得我第一次参加比赛时,布赖恩和杰西——就是我提过的那家Fast Blitz自行车店的员工——当时是铁人三项的自行车维修员。

I remember my very first race, Brian and Jesse, who work at Fast Blitz, the bike shop I mentioned, were the actual bike mechanics for the triathlon.

Speaker 1

所以我从游泳出来的时候特别晚。

And so, I was very late out of the swim.

Speaker 1

那时候过渡区里几乎没人了。

There was really no one in transition left.

Speaker 1

整个区域就我一个人在忙活。

I had it all to myself.

Speaker 1

他们看着我,我听见他们在喊:‘你在干什么呢?’

And they're looking at me and I hear them yelling, What are you doing?

Speaker 1

我当时正在梳头发,还把发圈戴好,真觉得没必要着急。

I was combing my hair and putting my scrunchie in and I just saw no need to rush.

Speaker 1

那是我人生中的第一场铁人三项。

This was my first triathlon.

Speaker 1

我当时就想好好享受一下,所以过渡环节拖得特别久。

I was trying to enjoy it And so, I had a really long transition.

Speaker 1

我记得杰夫看了我的时间,直接问我:你干嘛呢?

I remember Jeff looking at my time, he was like, What were you doing?

Speaker 1

我就在放松。

And I was relaxing.

Speaker 1

我在做准备。

I was getting ready.

Speaker 1

我那辆自行车特别棒。

I had a great bike.

Speaker 1

我玩得特别开心。

I had a really good time.

Speaker 1

下自行车后,我换跑步装备时心想:我要穿粉红色的袜子,不穿蓝色的。

And then off the bike, I was transitioning into my run outfit and I thought, I want to wear the pink socks, not the blue socks.

Speaker 1

于是我就把袜子换掉了。

So I changed my socks.

Speaker 1

所以我第一次参赛时,根本不知道自己在干什么。

So my first transition was complete ignorance of what I was doing.

Speaker 1

我当时唯一的念头就是完赛。

My entire goal was just to finish.

Speaker 1

我顺利完赛了,表现还不错。

And I finished and I did great.

Speaker 1

我记得用时不到七小时,这对我来说已经很棒了。

I think I was under seven hours, which for me was wonderful.

Speaker 1

那段经历真的特别开心。

I had such a wonderful time.

Speaker 1

后来过渡环节变得越来越难,但我一直没改时间。

So as transitions got much harder for me, I never changed the time.

Speaker 1

这五年来,我始终保持着同样的节奏。

I've just been constant the whole five years.

Speaker 1

我确实进步了很多,但比赛本身也变得更难了。

But I did get much better, but they got much harder.

Speaker 1

我连梳头都做不了了。

I could no longer do my hair.

Speaker 1

以前我就像个普通的运动员,赶着时间准备。

I was sort of a normal athlete where I'm racing to get ready.

Speaker 1

但系鞋带对我来说特别困难。

But I have a lot of trouble tying my shoes.

Speaker 1

扣扣子、拉拉链也都成问题。

I have trouble with buttons and zippers.

Speaker 1

连穿上衣服都费劲。

I have trouble even getting on.

Speaker 1

我通常会把湿衣服脱掉,直接套上一件干的,从游泳转到骑行时这么穿,因为一冷起来实在受不了。

I usually take off my wet shirt and just stick on a dry shirt over it for transitioning from a swim to a bike because I can get so cold.

Speaker 1

所以对我来说,这真的特别难。

So it really is tough for me.

Speaker 1

等骑完车,我现在靠吃药,状态好多了。

By the time I'm done with the bike, I'm a little better now with meds.

Speaker 1

但如果药效没调好,我一开始就觉得吃力,那跑步的时候就更扛不住了。

But if meds aren't optimized and I'm starting to struggle then, then I'm really going to struggle on the run.

Speaker 1

我会尽量给自己多留点时间。

I try to take that little bit of extra time.

Speaker 1

对我来说,换项环节大概是比赛中最难的部分。

Transitions are probably the hardest part of the race for me.

Speaker 1

拉里,我能说一句吗?

Can I just say, Larry?

Speaker 1

无论年纪大了还是得了帕金森病,让你的大脑保持健康的一个关键,就是尝试新事物、同时做多件事。

One of the really important ingredients for your brain, both as you get older and if you have Parkinson's disease, is to do things that are new and to multitask.

Speaker 1

换项过程简直就是锻炼多任务处理能力的绝佳训练场。

Transitions are an incredible laboratory for multitasking.

Speaker 1

我觉得这全都是在维护大脑健康。

I look at it as it's all brain health.

Speaker 1

这些都在帮那些生病的神经元重新建立连接,尽量榨干它们最后一点潜力。

This is all just helping my my little neurons that are sick, try to get them to develop new connections, try to squeeze as much juice as I can out of those puppies.

Speaker 1

我觉得这挺了不起的,五年来我的跑步成绩没变,可这期间我从59岁快到64岁了,还得了病,现在都第五年了。

I look at it as an accomplishment that my race times have stayed the same over five years despite me going from 59 to going to be 64 next week and having a disease, I'm going on year five.

Speaker 0

天哪。

Wow.

Speaker 0

确实了不起。

Yeah.

Speaker 0

非常了不起。

Very impressive.

Speaker 0

我跟你相处过一段时间,亲眼看到你训练的强度有多大。

Which, having spent some time with you, I've seen the volume at which you train.

Speaker 0

前年夏天,我们跟你一起待了一周。

We were with you for a week, a couple summers ago.

Speaker 0

我是个教练。

And I I'm a coach.

Speaker 0

我也是个运动员。

I'm an athlete.

Speaker 0

我不仅自己训练,还带了一群学员。

I train myself, and I I coach a bunch of people.

Speaker 0

我记得那年夏天,看到你早上四点就起床去游泳一英里,然后去上班八到十个小时,下班回家后又骑上自行车练两三个小时,边骑车边吃晚饭。

And I watched you get up at 04:00 in the morning and go to the pool and swim for a mile and then go into work for eight to ten hours and then come home and hop on your bike for two to three more hours eating dinner while you're riding your bike.

Speaker 0

我得说,回想起我一开始看过的你的简历,你在哈佛同时承担着好几份全职工作。

I have to say and back to the bio that I went through at the beginning, you have multiple, huge, full time jobs at Harvard.

Speaker 0

但你依然保持着远超我带过的大多数运动员的训练量。

And yet you maintain this incredible training volume more than almost any athlete that I coach.

Speaker 0

所以我特别好奇,你是怎么把这一切都安排得下来的?

And so I'm so curious how you make it all work.

Speaker 0

在这么忙碌的日程里,你用什么方法把训练挤进去的?

What are some of the tricks that you use to fit training into an otherwise incredibly busy lifestyle?

Speaker 1

每个人都有自己的应对方式。

So, everyone wrestles with this in their own way.

Speaker 1

至少过去几年,我一直在努力对自己宽容一点,明白这辈子不可能事事都做到完美。

I think for one, I try really hard to least I have the last couple of years to give myself a little bit of grace that I'm not going to get everything perfect the rest of my life.

Speaker 1

我会对自己说,这件事我可以做到完美,但我会选择做到A或A-,留出空间早点回家——七点,或者六点四十五。

And to literally say to myself, can do an A plus job at this, but I'm going to do an A or an A-, and I'm going to make some room to not get home at eight but to get home at seven or to get home at 06:45.

Speaker 1

这样我才能挤出两小时骑车。

So I can do that two hours on the bike.

Speaker 1

所以第一点,你必须做出取舍。

So one is that you have to make some trade offs.

Speaker 1

不可能无限制地往里加东西。

There's no way to just keep adding.

Speaker 1

我总跟我的学生说,你只有一块饼。

I always tell my mentees, you have one pie.

Speaker 1

你可以切得小一点,但别指望饼能变大。

You can cut smaller slices, but you just can't make it what it is.

Speaker 1

对我来说,取舍就是放弃那些其实不重要的事,允许自己有些事不必做到完美。

And so, the tradeoff for me has been to try to give up things that actually didn't matter, to let myself do some things less perfectly.

Speaker 1

具体来说,我会在每周初就把锻炼需要的东西都放进车里。

Practical things, I put everything I need to work out in my car at the beginning of the week.

Speaker 1

我车上 literally 有二十件能做的运动装备,随时都能开上车练一趟。

I have literally like 20 things I could do 20 workouts and just be in that car.

Speaker 1

要是哪场讲座取消了,我一点面子都不顾。

And if I have a lecture canceled, I have no pride.

Speaker 1

我立马换上裙子,套上跑鞋,直接出门跑步。

I will get my skirt, I will stick on my running shoes and I will go do my run.

Speaker 1

我那儿存了好多视频,都是Jeff说:‘我穿着珍珠项链,脱掉高跟鞋,跑完八英里,再回去讲课。’

I have so many videos to Jeff saying, Well, I'm in my pearls, I'm throwing off my heels, I'm doing my eight miles, and then I'm going to go back and give a lecture.

Speaker 1

所以我尽量把事情挤进日程里,能安排就安排。

So, I try to fit things in to the extent I can around my schedule.

Speaker 1

说实话,我内心真的很害怕这个病。

I guess the other piece, to be quite honest and vulnerable, I'm really scared of this disease.

Speaker 1

当你觉得马上要失去行动能力,而帕金森还可能影响认知,改变你的思维方式时,那种感觉太可怕了。

I think that when you feel like you are going to lose your ability to move, and Parkinson's also has potential cognitive effects, so it challenges potentially the way you're going to be thinking.

Speaker 1

我本身就已经有注意力分散的问题了,所以不得不想办法适应。

I already have some multitasking impact, so I've had to learn how to work around that.

Speaker 1

它会引发焦虑和抑郁。

It can cause anxiety and depression.

Speaker 1

多巴胺影响的途径有很多。

There are multiple pathways that dopamine affects.

Speaker 1

帕金森病的症状多种多样。

There are a lot of different symptoms to Parkinson's.

Speaker 1

这病特别吓人,因为根本没法预知进展有多快,生活里充满了不确定性。

It's a really frightening disease in the sense that it's very uncertain how fast you're going to progress, so you have a lot of uncertainty in your life.

Speaker 1

我试着用快乐的心态去坚持训练,来应对这种恐惧和不安。

And I think the way I'm trying to manage that fear and that uncertainty is to try to of pursue my training with joy.

Speaker 1

我骑上自行车的时候,从不觉得这是个不得不完成的锻炼任务。

I get on the bike and I don't look at it as like, Oh, I have to do this bike workout.

Speaker 1

我反而觉得,我有机会骑上自行车。

I look at it as like, I get to be on the bike.

Speaker 1

我这辈子从来没看过电影。

I never watched movies in my life.

Speaker 1

从来没看过。

Never watched them.

Speaker 1

但现在我要下楼去看两部电影。

But now I'm going to go watch two movies downstairs.

Speaker 1

或者我去跟亚伦聊会儿。

Or I'm going to talk to Aaron.

Speaker 1

他会下来陪我骑车,我们边骑边聊点别的。

He's going come down and bike with me and we're going to talk about something.

Speaker 1

我在跑步机或骑车的时候,经常会做不少事。

Do a lot if I'm on the treadmill or on the bike.

Speaker 1

我干很多活儿。

I do a lot of work.

Speaker 1

我会听一些教育类视频的初稿录音。

I'll listen to video drafts of some of my educational media.

Speaker 1

所以我尽量多做点。

So I do as much as I can.

Speaker 1

我尽量把很多事情叠在一起做,就算内心没那么积极,也会强迫自己保持正面、感恩,感谢自己还能走路、能起身、能下水游泳。

I try to layer things and I try to be super, super positive, even if I'm not feeling it inside, positive and thankful and grateful that I am able to walk and get up and get into the water and swim.

Speaker 1

所以,训练本身并不是我额外增加的东西。

So the training, it's not what I'm adding.

Speaker 1

它是我现在度过生活的唯一方式。

It's the way I'm getting through life right now.

Speaker 1

它帮我真正应对生活中的各种挑战,让我成为一个更好的母亲、更好的妻子,因为它帮我管理那些恐惧和不安——这些情绪如果不加控制,很容易影响到人际关系,而我们毕竟都是普通人。

It's what's helping me actually navigate my life and it's making me a better mother and a better wife because it's helping me to manage that fear and uncertainty that can kind of leak out to relationships in ways that aren't always productive because we're all human.

Speaker 1

所以,我不确定这有没有稍微说到点子上。

So, I don't know if that touches on it a I little

Speaker 0

我觉得你在很多方面说得特别准。

think in a lot of ways you kind of nailed it.

Speaker 0

真正定义一个成功运动员的,不是那些只为了比赛或登山而活的人,而是那些能在训练中找到乐趣的人。

What I think really defines a successful athlete is not someone who just lives for their event, whether it be a race or a mountain climb, but learns to just find joy in the training.

Speaker 0

因为训练的时间,远远长过比赛本身。

Because the training is hundreds of times longer than the actual event is.

Speaker 0

就是日复一日地坚持。

It's the day in, day out.

Speaker 0

所以,能真正从训练中找到乐趣、懂得珍惜它,而不是只盯着目标,这才是关键。

And so to get to a place where you find joy and you appreciate the training and you're not just looking to what you're training for, I think that is the key.

Speaker 1

没错。

Absolutely.

Speaker 1

我经常会有特别糟糕的一天,别人就会说,他们跑步后会有那种跑者高潮。

I mean, I'll often have a really hard day and people will say, well, they run and they get this runner's high.

Speaker 1

我从来没体验过那种感觉,顺便说一下。

I've never had a runner's high, FYI.

Speaker 1

我还在等呢,但从来都没发生过。

I'm still waiting for it, but nothing has ever happened.

Speaker 1

但每次我跑步的时候,心里就想着:好吧,我正在做这件事。

But when I run, I'm filled with like, okay, I'm doing this.

Speaker 1

我今天过得特别糟。

I had a really hard day.

Speaker 1

我的药不太对劲。

My meds aren't right.

Speaker 1

我感觉不太舒服。

I'm not feeling well.

Speaker 1

然后我跑去跑完了九英里,我怎么做到的?

And then I'm running and like, how did I just do nine miles?

Speaker 1

这到底是怎么发生的?

Like, how did that happen?

Speaker 1

我觉得,如果这种事都能发生,那明天一定会是更好的一天,因为这说明一切皆有可能。

And I just feel like if that was possible, then I'm going to have a better day tomorrow because it's possible.

Speaker 1

我从大多数训练中都能得到这种感觉,哪怕那些练得不顺的也一样。

And I get that from most of my workouts, even the ones that don't go well.

Speaker 0

我想换个话题,聊聊你和教练之间的那种联系和关系。

I want to shift gears a little bit here and just talk a little bit about the bond and relationship you have with your coach.

Speaker 0

我亲眼见过,去看过你的一场比赛,也听你提起过他们。

I've seen that firsthand when I came to one of your races, and I've heard you talk about them.

Speaker 0

我刚开始当教练的时候,那件事我永远都忘不了。

When I first got into coaching, I will never forget.

Speaker 0

你曾经跟我说过,你和教练的关系是你一生中最重要的关系之一。

Just you told me that the relationship you have with your coach was one of the most important in your entire life.

Speaker 0

你能说说看,这是怎么回事吗?

And so can you talk a little bit about that?

Speaker 1

是的。

Yeah.

Speaker 1

杰夫从2019年就开始当我的教练了。

So Jeff is my coach since 2019.

Speaker 1

现在我觉得他不只是教练,更像是个亲密的朋友。

I kind of consider him a dear friend now as well.

Speaker 1

最近你发给我一篇文章,拉里。

Recently, you sent me an article, Larry.

Speaker 1

不确定你愿不愿意公开,但那篇讲的是什么才算是好教练。

Don't know if you want to post that, but it was about what makes a great coach.

Speaker 1

这让我也好好反思了关于杰夫的很多事情。

It caused me to do a lot of reflecting as well about Jeff.

Speaker 1

我想说的一点是,杰夫能力超强。

Of the things I think I want to say is Jeff, first of all, he's incredibly competent.

Speaker 1

他在这行里做得非常出色。

He's excellent at what he does.

Speaker 1

他完全知道自己在做什么。

He knows what he's doing.

Speaker 1

这些当然都是事实。

So, of course, is just all true.

Speaker 1

这根本不用多说。

It goes without saying.

Speaker 1

最让我感动的是,他真心相信我、支持我,哪怕我没什么背景,却从不把我当外人,一直像对待他的顶尖运动员那样对待我,这真的特别珍贵。

I think his genuine desire and enthusiasm and belief in me with no background to reach my goals and approaching me no differently than he would one of his elite athletes, I think that is incredibly special.

Speaker 1

我们俩还得一起摸索,怎么学会包容。

I think we've had to really navigate together how to tolerate.

Speaker 1

他得一直忍受跟我有关的种种不确定和风险,比如我的起搏器、心脏问题、帕金森病,还有赛道上的安全问题。

He's had to tolerate a lot of uncertainty and risks with me, whether it was my pacemaker, my heart stuff, Parkinson's, the safety on the course.

Speaker 1

我还记得那些哭着讨论的时刻,问自己:受伤之后,我该不该退出比赛?

I remember having tearful conversations about, Do I pull out of a fall after those injuries?

Speaker 1

他几乎从不对我说:‘苏,我觉得你别做了。’

Him almost never saying no to me saying, Sue, I think you shouldn't do it.

Speaker 1

他一直在努力尊重我的自主权,让我自己做决定、追求目标,从不直接拒绝——这对我现在特别重要。

And just trying to navigate how he is trying to let me have my own agency around my decisions and my goals and never to say no and never, because that's so important to me right now.

Speaker 1

同时,他又能当我的指南针,始终想着我的健康和长远福祉,想着要留得青山在,不怕没柴烧。

And at the same time, to be a guidepost, to have that bigger picture of my health and well-being and to live to fight another day in mind.

Speaker 1

我觉得我们是靠着彼此的尊重,一路走过来的。

And I think we have navigated that with this mutual respect.

Speaker 1

我也觉得,教练不是完美的,运动员也不是完美的。

I also think coaches aren't perfect and their athletes aren't perfect.

Speaker 1

我常愿意公开聊这一点,因为我带过很多后辈,觉得特别有启发:杰夫有他的特点,我也有我的。

And one thing I like to talk about out loud, because I think it's just so instructive as someone who mentors a lot of people is Jeff has his own nuances, and I have mine.

Speaker 1

我学会了怎么跟他说出我的需求。

I learned how to tell him what I needed.

Speaker 1

如果他没按我需要的方式回应,我就得说:‘杰夫,你听我说。’

If he wasn't responding in a way that I just needed him more, I had to learn to say, You know what, Jeff?

Speaker 1

我知道这周我没什么特别的事发生。

I know there's nothing exciting going on with me this week.

Speaker 1

没有比赛,也没做什么不一样的训练,只是在枯燥地坚持耐力训练,但我真的很希望你能通过Training Peaks告诉我:‘苏,你太棒了。’

There's no race and I'm not doing anything different and I'm just slogging out Endurance, but I really need you to somehow say in Training Peaks, You're so awesome, Sue.

Speaker 1

你做得非常好,因为这周我真的挺艰难的。

You're doing an amazing job because I'm just struggling this week.

Speaker 1

我觉得有时候,我们终于找到了一种方式,让我能坦率地说出自己的需求。

And I think sometimes you really and we found our way to me being able to say what I need to say.

Speaker 1

他也学会了什么时候该直接打电话给我,说:‘深呼吸,别急。’

He's found his way to somehow knowing when he just has to pick up the phone and say, Listen, deep breath.

Speaker 1

我想你可能看过海恩市的片段,有那么几个瞬间,让我特别清楚地感受到我和杰夫之间的关系。

I think you probably saw Hain City, there's a couple of moments when I think about my relationship with Jeff that have stood out to me.

Speaker 1

我给你三个简短的句子,发生在三个不同的时刻。

I'll give you three very quick one liners that are at three very different time points.

Speaker 1

我第一次在诊断后完成秋季比赛时,那一年,那段艰难到极点的适应疾病的日子,我正冲下终点坡道。

When I finished the fall for my very first time after that diagnosis, the year, that painful, painful year of coming to terms with this disease, I was coming down the chute.

Speaker 1

我停下脚步,涂上口红,整理好头发,管他呢,我都坚持了十七个小时,至少得体面地冲过终点。

I paused, put on lipstick and go on my hair because damn it, if I was out there seventeen hours, I was going to look good coming across the finish line.

Speaker 1

我高兴得不得了。

I was just so overjoyed.

Speaker 1

我冲过终点线时,他就在终点区等着。

And I came down the finish line and he was in the shoot.

Speaker 1

他张开双臂,像金妮一样大喊大叫。

He was in the shoot with his arms wide open and just like Goldie, yelling.

Speaker 1

我一直告诉自己不能看他,怕会被取消资格。

I kept saying, I can't acknowledge him because I think I could get disqualified.

Speaker 1

我觉得他根本不该出现在这儿。

I don't think he's supposed to be here.

Speaker 1

但对我来说,冲下赛道时看到他在那儿等着,就是我珍藏的其中一个瞬间。

But what it meant to me, like running down that chute and seeing him, like waiting there, that was like one little memory I have.

Speaker 1

另一个是那场我药物控制特别糟糕的比赛。

Another is just that particular race that I was really struggling with medication.

Speaker 1

那一年我始终没调整好状态。

It was in that year where I didn't have it right.

Speaker 1

骑车时我吐得厉害,他却在赛道边跟着跑,一路陪着我。

I was vomiting off the bike and he's running on the side of the race, outside the bike running.

Speaker 1

你带检查清单了吗?

Did you take a checklist?

Speaker 1

你吃药了吗?

Did you take your pills?

Speaker 1

Goldie,药。

Goldie, pill.

Speaker 1

我就这样一项项核对,他就在旁边说:深呼吸。

And just going down this checklist and he's like, Breathe.

Speaker 1

慢慢来。

Take your time.

Speaker 1

就在我身边陪着我。

Just right there with me.

Speaker 1

我一直在回想以前和约翰·布兰奇聊过的那个话题,关于‘孤独’和‘一个人’的区别。

I kept thinking of this conversation I used to have with John Branch about the difference between loneliness and alone.

Speaker 1

我们以前经常聊这种深层次的话题。

We used to have these meta talks.

Speaker 1

我说,我不需要有人陪着我打发时间。

I said, I don't want company.

Speaker 1

我需要的是有人陪在我身边。

I want someone to accompany me.

Speaker 1

我不需要别人来替我扛着。

I don't need someone to carry me.

Speaker 1

我不需要别人推着我走。

I don't need someone to push me.

Speaker 1

我不需要别人拉我一把。

I don't need someone to pull me.

Speaker 1

我需要有人陪在我身边。

I need someone to accompany me.

Speaker 1

我觉得这才是好教练。

And I feel like that's a great coach.

Speaker 1

他们就在你身边。

They're by your side.

Speaker 1

我给杰夫送过一份礼物,上面写了一句阿梅莉亚·埃尔哈特的话,我可能记不全,但意思正是我想表达的。

I wrote to Jeff on a gift I gave him, a quote from Amelia Earhart, which I will screw up, but the essence of it is how I feel.

Speaker 1

你的教练帮你直面恐惧,找到勇气。

Your coach helps you face your fear and find your courage.

Speaker 1

当我面对恐惧时,我会找到自己的勇气,但杰夫总在帮我守住那份平静。

When I face my fear, I find my own courage, but Jeff always is looking to help me with that peace.

Speaker 1

他从来都没有放弃过我。

And he's just never ever gives up on me.

Speaker 1

他一直在我身边。

He's been by my side.

Speaker 1

我觉得这才是好教练该做的。

Think that is what a great coach is.

Speaker 1

为了公平起见,我要感谢整个团队、整个铁人三项圈子、自行车店的各位,大家都以不同方式帮了我。

Just to be fair to this whole team, to the whole triathlon community, to the guys in the bike shop, all of them, they've all played some role in helping me.

Speaker 1

我心中充满感激,但同时也悟出一个道理。

I just feel this sheer gratitude, but also there's like a lesson.

Speaker 1

我常会跟其他认识的帕金森患者,或者正在经历困难的人聊聊。

I try to talk to other people I've come to know with Parkinson's and who are struggling with something.

Speaker 1

别指望一件事或一个人能解决所有问题。

You can't get everything from one place.

Speaker 1

得一点一点积累这些时刻。

You need to kind of build moments up.

Speaker 1

要建立那些让你感到有力的瞬间,还有多种人际关系。

You build moments where you feel strong and multiple relationships.

Speaker 1

每个人只贡献一小部分,但合在一起,你就找到了支撑你的框架。

Each one does a little piece, but together you find your scaffolding that you need.

Speaker 1

杰夫是其中重要的一环,还有我通过他认识的那些人、我的团队等等,也都不可或缺。

Jeff's an important component of that, as well as the people I've come to know through my relationship with him, my team, etcetera.

Speaker 0

是的。

Yeah.

Speaker 0

不管做什么,他们总能打造出如此出色的团队。

They've always had a knack for building these incredible teams no matter what you're doing.

Speaker 0

咱们能不能聊聊比赛本身的事?

Can we talk a little bit about the actual races themselves?

Speaker 1

好。

Yeah.

Speaker 0

去年十二月,我去过你在佛罗里达海恩斯城参加的比赛。

So I came to your race last December in Haines City, Florida.

Speaker 0

对。

Yep.

Speaker 0

你主要是想让我去当个司机,帮你凑够八个人。

You mostly just wanted me there as a driver and to make you eight.

Speaker 0

但我以前从没参加过这种比赛,根本不知道不准戴耳机。

But one thing I had never realized, not having been to one of these races, was that they don't allow you to wear earbuds.

Speaker 0

也不能带手机用来联系。

You can't have a phone with you for communications.

Speaker 0

你一个人完全孤零零地在赛道上跑。

You are out there on the course 100% by yourself.

Speaker 0

我知道我平时训练时,耳机从来就没摘过。

And I know for me, when I do a lot of my training, I always have earbuds on.

Speaker 0

听有声书、播客、音乐,样样都来。

I listen to audiobooks, podcasts, music.

Speaker 0

这些能帮我分散注意力,减轻长时间训练时那种煎熬的感觉。

And I just find it so helpful to just distract my brain from the suffering that I sometimes experience during these long workouts.

Speaker 0

我完全没想到,一场长达八小时的比赛,居然一样都不让用。

And I had no idea in something that can be an eight hour event, you can't have any of that.

Speaker 0

你整个过程中就完全一个人在脑子里折腾。

You were literally just in your own head the whole time.

Speaker 0

所以,确实让我挺意外的。

And so, yeah, that was that was a shock to me.

Speaker 0

比赛的时候,你身体在受罪,你靠什么来撑过去?

What what are what do you do during the races to just help while your body is kind of living in the pain cave?

Speaker 1

有些人会专门训练时不听任何东西,这样比赛时就不会不适应,但我完全不认同这种做法。

Some people will actually train without anything so that the races aren't and I have no merit in that.

Speaker 1

我觉得每天训练已经够苦了,没必要再故意让自己更难受。

I feel like there's no reason to make myself miserable when I'm training every single day.

Speaker 1

所以我还是会戴一只AirPod。

So, do wear one EarPod.

Speaker 1

我挺克制的,但训练时该听的我都听。

I'm safe about it, but I do all those things when I train.

Speaker 1

不过比赛时我试过几种方法,可以跟你说说哪些根本行不通。

But in races, I've tried a few things and I can tell you several of my efforts that haven't worked.

Speaker 1

我试过背一些特别喜欢的歌。

One is I try to actually memorize some songs that I really like.

Speaker 1

我总能记住一两句,听到的时候就能跟着唱,但一个人的时候,脑子里就只剩三四个词了。

I always know one line of them or two lines, and then I can sing it along if I hear it, but when you're totally on your own, you don't remember like you kind of have three or four words.

Speaker 1

所以我试着把喜欢的歌词打印出来。

So I tried actually to print out some songs I liked.

Speaker 1

游泳训练的时候,我试着看歌词、背下来,可就是记不住。

When I was doing swims, my workout swims, I would try to look at them and memorize the lines And I could not do it.

Speaker 1

真的记不住。

I just couldn't do it.

Speaker 1

这招没用。

So that didn't work.

Speaker 1

后来我就改唱我喜欢的歌的第一句。

Then I've tried singing the first line to songs I like.

Speaker 1

在铁人三项最后两个小时,也就是第十六和第十七小时,我一直在那儿扯着嗓子唱《I Feel Good》,一遍又一遍。

I think for the entire last two hours of the full Ironman, like hours sixteen and seventeen, I sang, I feel good over and and over again as loud as I could.

Speaker 1

比赛结束的时候,有人走过来跟我说,那时候我正一个人在漆黑一片的野外。

People came up to me at the end of like, I was out there in the pitch dark.

Speaker 1

我听见你了。

I heard you.

Speaker 1

就反复唱那一句歌词。

Just the one line over and over.

Speaker 1

几年前我还参加过一场比赛。

I've also done a race a couple of years ago.

Speaker 1

那天一直在下雨,我正冒着雨跑步。

It was raining out and I was doing the run-in the rain.

Speaker 1

要是下雨下得那么大,我早就不骑车了,但我还是在跑。

I would have abandoned a bike if it was pouring, but I was running.

Speaker 1

我编了一首歌,简直荒唐。

I made up a song It was ridiculous.

Speaker 1

我真的一边跑一边大声编歌,歌词讲的都是我生活中的人。

I literally was making up a song about people in my life and singing it out loud.

Speaker 1

当我实在疼得受不了的时候,我就来回数数。

And then when I'm really in pain, I count forwards and backwards.

Speaker 1

我就从一数到十,然后再倒着数回去。

I literally count one, two, three, four to 10, and then I count backwards.

Speaker 1

我还会大声地喊出来。

I do this out loud loudly.

Speaker 1

听到我的声音,附近的人通常也和我处在同样的状态。

Hear it and generally, if they're near me, they are in exactly the same position I'm in.

Speaker 1

我们可不是在冲刺冲到前面。

We are not sprinting to the front.

Speaker 1

我们只是在七到八小时这段路上艰难地熬着。

We are slogging it out between the seven and eight hour mark.

Speaker 1

我一般就在七小时到七小时十分钟这个位置。

I'm usually around that seven, seven, ten mark.

Speaker 1

还有件事我要说,拉里,我在比赛时特别坦率。

The other thing I do, Larry, is I'm really open in races.

Speaker 1

我尽量跟每个人聊天。

I try to talk to everyone.

Speaker 1

我真的很喜欢结识新朋友。

I actually love meeting people.

Speaker 1

我一直想写一篇文章,叫《从队伍末尾学到的事》。

I keep wanting to write an article called What I've Learned from the Back of the Pack.

Speaker 1

虽然我不是最末尾的那个,但我确实处在队伍的后半段。

And even though I'm not in the total back of the pack, I am in the back of the pack.

Speaker 1

生活在一个如此分裂的社会里。

Live in such a fractured society.

Speaker 1

我走遍世界各地,见过太多可怕的景象,也见证过人性最黑暗和最光明的一面,但最近这几年真的很难熬。

And as someone who's worked all over the world and have seen things that are really horrible and also seen the worst and the best of humanity, this last couple of years has been tough.

Speaker 1

我们之间的隔阂越来越深,这让我感到很沉重。

It's been tough how fractured we are.

Speaker 1

我觉得运动,尤其是耐力赛事,恰恰有它特别美好的地方。

I feel like it's a wonderful thing about sports and especially about Endurance events.

Speaker 1

你一走出去,这些全都烟消云散了。

You're out there all of that melts away.

Speaker 1

谁在乎他们投了谁的票?

Who cares how anyone voted?

Speaker 1

你会聊起生命中那些重要的人,或者你正面对的困难,为什么你选择站在这里。

You talk about the people you love in your life or what challenge you're facing or why you're out there.

Speaker 1

你看到有人坐下来,好像要放弃了,就走过去,根本不在乎他是谁。

You see someone sit down and they're about to quit and you go over and you don't care who they are.

Speaker 1

需要帮忙吗?

You say, Could I lend you a hand?

Speaker 1

你还好吗?

Are you okay?

Speaker 1

靠我身上吧。

Lean on me.

Speaker 1

给你一粒盐丸。

Here's a salt tab.

Speaker 1

你能做到的。

You can do it.

Speaker 1

我觉得这简直就是一场关于人性本质的奇妙实验。

And I just feel like it's this wonderful laboratory of what it means to be human.

Speaker 1

以前我和约翰聊天时总说,跑步这件事真的很特别。

I used to tell John in our many conversations, there's something about a race that's really different.

Speaker 1

对我而言,第一点就是,你虽然一个人在跑,却和成千上万的人做着同一件事。

And the races for me, number one is this feeling of you're doing something alone, but you're with a lot of people that are doing that very same thing.

Speaker 1

这是一种非常难得的体验,让你真切感受到人与人之间纯粹的陪伴之乐。

It's a really incredible way to have a belief in the sheer joy of human companionship.

Speaker 1

我觉得第二点是,我其实不太会游泳,拉里。

I think the second is I'm really not a good swimmer, Larry.

Speaker 1

你要是见过我跳进水里,看到周围几百号人,就会发现我个子挺小的。

You would have seen When I jump in the water and there are hundreds and hundreds of people in the water, I'm pretty small.

Speaker 1

大多数人个头都比我大。

Most are bigger than me.

Speaker 1

我水平一般,所以没什么信心。

I'm not that good, so I'm not very confident.

Speaker 1

我有帕金森病,还装了起搏器,今年六十四岁了。

I've got Parkinson's disease and a pacemaker and I'm sixty four.

Speaker 1

每次下水,我其实挺害怕的。

Altogether, I'm kind of scared when I get in the water.

Speaker 1

但每次我都逼自己直面这种恐惧,告诉自己一定要用喜悦、决心和对自己的信念去战胜它。

And there's something about facing that fear and just facing it and saying, and like almost insisting that I am going to override that fear with incredible joy and determination and belief in myself.

Speaker 1

直到今天,每次比赛游到终点,有人帮我上岸时,我都惊讶自己居然还活着,而且好好的。

To this day, every single race, when I get to the end where they're helping you out of the water, I am shocked that I'm alive and well.

Speaker 1

哪怕我胖得不行,只要参加公开水域游泳,我都会停下来,和愿意一起庆祝的人一起庆祝。

Even if I've gotten really fat I was in a downriver swim I will pause and celebrate with anyone that will celebrate with me.

Speaker 1

我会拥抱那些帮我上岸的人。

I hug the people helping me get out of the water.

Speaker 1

附近任何人,我都会抱一抱。

I hug anyone close by.

Speaker 1

我会为自己加油。

I cheer for myself.

Speaker 1

如果杰夫在场,我通常会大喊:‘我领先了吗?’

If Jeff is there, I usually will yell, Am I winning?

Speaker 1

我觉得这件事特别能滋养我的内心。

And I feel like there's something about it that just feeds my soul.

Speaker 1

我曾经那么害怕,但不知怎么的,我还是面对了。

It's like I was so scared, but somehow I faced it.

Speaker 1

我现在很好。

And I'm fine.

Speaker 1

我真的非常好。

And I'm absolutely fine.

Speaker 1

我知道我总说一步一个脚印。

I know I always say one foot in front of another.

Speaker 1

有过几次特别艰难的游泳。

Had a couple of really hard swims.

Speaker 1

那次比赛的泳程特别艰难。

One, the race that you were at was like a really hard swim.

Speaker 1

最近我总对自己说,从一个浮标游到下一个浮标。

I've been saying to myself like one buoy to another lately.

Speaker 1

游泳的时候你根本看不到浮标,但你得相信它就在那儿。

And there's something about swimming that you can't even see the buoy, but you have to trust that it's going to be there.

Speaker 1

那种感觉,就像你明明在游,却好像原地不动。

There's the aspect of you feeling like you're going nowhere.

Speaker 1

游泳的时候,我真的有时候觉得根本没往前挪。

When I'm swimming, I seriously feel like sometimes I am not moving.

Speaker 1

但只要你坚持下去,最终你还是会到达目的地。

But if you just keep doing whatever you were doing, eventually, you do get there.

Speaker 1

你真的在前进。

You do move forward.

Speaker 1

如果有人撞到我,比如我经常被撞得东倒西歪,我现在学会了保持冷静。

And if someone's hitting you, like I get bashed around, I've learned to just stay calm.

Speaker 1

保持冷静。

Just stay calm.

Speaker 1

别做出反应。

Don't react.

Speaker 1

这其实就像人生的隐喻。

And there's all this metaphor for life.

Speaker 1

比如,我游到那个浮标那儿了。

Like, okay, I'm at that buoy.

Speaker 1

我心里想,我总算挺过来了。

I'm like, I just survived.

Speaker 1

九个大个子从我身上游过去,我就放松身体,随波逐流,继续往前游。

Like nine large men swimming over me and I just went limp and let myself go and continue on my way.

Speaker 1

工作中一感到焦虑,我就想起这个,告诉自己:别较劲,放轻松。

And then I think about that at work when I'm starting to get really anxious and say, Let it go.

Speaker 1

就是从一个浮标游到下一个浮标。

It's one buoy to the next buoy.

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