我以为自己懒惰，结果却患有睡眠障碍 | Lindsay Scola

你正在收听TED Talks每日节目，我们每天为你带来新想法，激发你的好奇心。

You're listening to TED Talks daily where we bring you new ideas to spark your curiosity every day.

我是你的主持人，Elise Hu。

I'm your host, Elise Hu.

你的疲惫是不是不一样？

Is your tired different?

这是睡眠专家Lindsay Scola希望多年前有人问她的问题。

It's a question sleep expert Lindsay Scola wishes someone had asked her years ago.

近二十年来，她一直疲惫不堪，以至于工作日中途会溜进厕所隔间，头靠着墙，睡着片刻，只为撑过一天。

For nearly two decades, she was so exhausted that she'd slip into a bathroom stall in the middle of the workday, lean her head against the wall, and fall asleep just to make it through.

她不是懒惰。

She wasn't lazy.

完全是别的问题，而她看过的每个医生都对此不以为意。

Something else was going on entirely, and every doctor she saw waved it off.

全球有数亿人正带着疲惫四处奔波，未得到治疗，还认为这种感觉是正常的。

Hundreds of millions of people worldwide are walking around exhausted, untreated, and thinking it's normal to feel this way.

我们一直被教导要硬撑着疲惫，而不是去问为什么。

We've been taught to push through exhaustion instead of asking about it.

这不是懒惰的流行病。

This isn't an epidemic of laziness.

这是诊断的失败。

It's a failure of diagnosis.

林赛最终被诊断出患有发作性睡病，这是一种神经系统疾病，此前她经历了十九年的症状、羞耻和自我怀疑。

Lindsay was eventually diagnosed with narcolepsy, a neurological condition, after nineteen years of symptoms, shame, and self doubt.

在她的演讲中，她解释了为什么误诊如此普遍，并指出了医生培训中一个惊人的空白。

In her talk, she explains why misdiagnosis is shockingly common and points to a startling gap in how doctors are trained.

在世界各地的医学院，医生在整个医学培训中平均接受的睡眠教育时间不到三个小时。

In medical schools worldwide, doctors receive on average less than three hours of education on sleep total across their entire medical training.

她提出，睡眠障碍是我们最未被充分认识的健康问题之一，影响多达五分之一的人。

She makes the case that sleep disorders are one of the most under recognized health problems we have affecting as many as one in five people.

因为对林赛来说，而且她相信对数百万其他人来说，得到正确的诊断不仅会改变你的感受，还会改变你能成为什么样的人。

Because for Lindsay, and she believes millions more, getting the right diagnosis won't just change how you feel, it'll change who you can become.

这段内容马上就来，先插播一小段广告。

That's coming up right after a short break.

本期节目由Wise赞助播出，Wise是管理全球所需货币的智能方式。

Support comes from Wise, the smart way to manage the currencies you need around the world.

你的生活是全球化的。

Your life is global.

你的钱也应该如此。

Your money should be too.

有些服务商承诺海外转账免手续费。

Some providers promise no fees on overseas transfers.

别被忽悠了。

Don't be fooled.

额外费用往往藏在虚高的汇率里。

Extra costs often hide in bloated exchange rates.

选择Wise。

Choose Wise.

你可以用超过40种货币进行汇款、消费和收款。

You can send, spend, and receive money in over 40 currencies.

你可以放心使用通常能在谷歌上看到的汇率。

Count on the exchange rates that you'd usually see on Google.

这就是为什么数百万人能节省数十亿的隐藏费用。

That's how millions save billions on hidden fees.

聪明一点。

Be smart.

明智一点。

Get wise.

访问wise.com。

Visit wise.com.

适用条款和条件。

Ts and cs apply.

那些让你夜不能寐的问题，关于孤独，关于友谊。

The questions that keep you up at night about loneliness About friendship.

关于去哪里玩。

About where to hang out.

这些问题我们也在思考。

We're thinking about them too.

这就是我们新播客《Corner Piece》的由来。

That's where our new podcast Corner Piece comes in.

我们从生活里最大的问题的小处着手。

We start small on life's biggest questions.

我是萨布丽娜。

I'm Sabrina.

我是塔哈。

I'm Taha.

我是梅丽莎。

And I'm Melissa.

我们是过去五年一起在网上创作内容的朋友。

We're friends who have been making stuff on the Internet together for the past five years.

我们和TED一起做了个播客，在里面展开调查、分享个人故事，还会请专家嘉宾来聊那些网上搜不到答案的人生问题。

And we made a podcast with TED where we launch investigations, share personal stories, and ask expert guests about life's un Googleable questions.

来《Corner Piece》和我们一起玩吧。

Come hang out with us on Corner Piece.

每隔一个周四更新新一期，你可以在任何收听播客的平台找到我们。

New episodes every other Thursday, wherever you get your podcasts.

接下来是今天的TED演讲。

And now our TED talk of the day.

我以前就是那种特别要强的孩子。

I was one of those overachiever kids.

同时忙活十二件事，整天想着改变世界，16岁那年能去耶鲁上暑期学校，我特别兴奋。

12 things going at once, already dreaming of changing the world, and I was so excited to go to summer school at Yale when I was 16.

我可没说我很酷。

I didn't say I was cool.

课程很难，也很有启发性。

The classes were tough and thought provoking.

但就在那时，我开始遇到一些奇怪的事情。

But that's when something strange started happening to me.

我坐在教室里，全神贯注，突然一阵迷雾袭来。

I'd be sitting in class completely engaged when suddenly, a fog rolled in.

我的思绪变得模糊，感官迟钝，世界一片朦胧，就像有人慢慢调暗了我大脑的开关。

My thoughts fuzzed, my senses dulled, the world blurred, like someone was slowly turning a dimmer switch on my brain.

我会掐大腿、跺脚，想尽办法对抗这股强烈的睡意。

I'd pinch my thigh, tap my foot, anything to fight this overwhelming urge to sleep.

有一次，我咬舌头咬得太用力，都出血了。

Once, I bit my tongue so hard it bled.

然后，一个念头像锤子一样砸向我。

And then the thought would hit me like a hammer.

如果我现在不睡觉，我就会死。

If I don't go to sleep right now, I'm going to die.

于是，我悄悄找个借口离开，溜进厕所隔间，头靠在墙上，就睡着了。

So somehow quietly, I'd excuse myself, slip into a bathroom stall, lean my head against the wall, and fall asleep.

我跟家庭医生说了这事，她说，你太忙了。

When I told my family doctor, she said, you're busy.

忙的人当然会累。

Busy people are tired.

这话听起来有点敷衍，但也像是某种进入成年世界的秘密仪式。

It felt dismissive, but also like some secret initiation into adulthood.

我有很多大梦想，很多事要做，所以我觉得自己只需要学会更好地保持清醒。

I had big dreams, a lot to accomplish, so I figured I just had to get better at being awake.

当我开始在职业政界工作时，疲惫成了一种荣誉勋章。

When I started working in professional politics, exhaustion was a badge of honor.

你熬夜越晚，咖啡喝得越多，就越觉得自己有价值。

The later you stayed up, the more coffee you drank, the more worthy you felt.

社会让我们相信，如果你感到累，那就说明你做对了。

Society convinced us that if we were tired, we were doing it right.

2008年，我加入了奥巴马的先遣团队。

In 2008, I joined the Obama Advance Team.

负责竞选活动中从后勤到美学等一切事务的人。

The people responsible for everything from logistics to aesthetics on the campaign.

但关于先遣工作，每四到六天就要到一个新城市，经常为了未来的美国总统通宵达旦。

But the thing about Advance, you're in a new city every four to six days regularly pulling all nighters on behalf of the future president of The United States.

风险很高。

The stakes were high.

节奏很快。

It was fast paced.

每个人都精疲力尽。

Everyone was exhausted.

我身边都是最优秀、最聪明、最忙碌的人，但我从没见过他们像我一样偷偷溜进洗手间打盹。

I was surrounded by the best, the brightest, and the busiest, but I never saw them sneaking into the bathroom to nap like I did.

我以为自己一定很懒，缺乏别人似乎都有的意志力。

I thought I must be lazy, that I lack the willpower everyone else seemed to have.

在所有这些干劲之下，我因为跟不上节奏而感到彻底的孤独。

And underneath all that drive, I felt utterly alone in my inability to keep up.

随着时间过去，我老是跟医生提起我犯困的事，但他们总是给我同样的那些关于改善睡眠习惯的漂亮宣传单。

As the years passed, I kept bringing up my sleepiness to doctors who kept pushing the same glossy handouts on improving my sleep hygiene.

我的直觉告诉我，事情没那么简单。

My gut knew something else was going on.

然后，那些梦就来了。

And then came the dreams.

我醒来时身体僵在床上，确信房间里有什么可怕的东西。

I'd wake up frozen in bed, convinced something terrifying was in the room.

我能看见它，但动不了也喊不出声。

I could see it, but I couldn't move or scream.

有个医生说那只是我把工作压力表现出来了。

One doctor said it was just me manifesting stress from my job.

有天晚上，我醒来听到一个小孩在低声说，

One night, I woke to a child whispering,

我能牵你的手吗？

can I hold your hand?

那个

The

第二天，我把整个卧室都熏了一遍鼠尾草，完全没想到自己可能得了神经系统疾病。

next day, I saged my entire bedroom, like, never across my mind I might have a neurological disorder.

三十五岁那年，我彻底撑不住了。

At thirty five, I hit my wall.

我能睡着，但总是睡不踏实。

I could fall asleep, but I couldn't stay asleep.

我几乎整夜都醒着，就在闹钟响之前才迷迷糊糊睡着。

I was awake most of the night falling back asleep just before my alarm went off.

大多数时候，我感觉自己像个疯疯癫癫的僵尸，勉强撑着。

Most days, I felt like a lunatic zombie, barely holding it together.

在紧张的工作会议中，我会突然把东西掉在地上。

I would drop things suddenly in the middle of stressful meetings at work.

实在没办法了，我求我的全科医生帮帮我。

At my wit's end, I begged my general practitioner for help.

她给我安排了一个家庭睡眠测试，结果排除了睡眠呼吸暂停，然后告诉我，你没事。

She ordered an at home sleep test, which came back negative for sleep apnea, and I was told, you're fine.

我直接冲回她的办公室，坚持说肯定还有其他问题。

I marched back into her office with a full defense that something else was wrong.

她打断我，承认说，我们现在已经超出了我们对睡眠的认知范围。

She stopped me mid sentence and admitted, we're officially beyond both our knowledge of sleep.

我被转诊给睡眠专科医生，他们是专门诊断和治疗睡眠障碍的医生。

I was referred to a sleep specialist, which is a doctor trained to diagnose and treat sleep disorders.

两个月后，在经历了十九年的症状、羞耻和自我怀疑之后，我被诊断出患有发作性睡病，这是一种大脑睡眠-觉醒周期的慢性神经系统疾病。

And two months later, after nineteen years of symptoms, shame, and self doubt, I was diagnosed with narcolepsy, a chronic neurological condition of the brain sleep wake cycle.

在你说十九年太夸张之前，其实并不夸张。

And before you say nineteen years, that's extreme, it's not.

发作性睡病的平均诊断周期是八到十五年。

The average diagnosis period for narcolepsy is eight to fifteen years.

这是因为在世界各地的医学院，医生平均接受的睡眠教育不到三个小时。

And that's because in medical schools worldwide, doctors receive, on average, less than three hours of education on sleep.

总共。

Total.

在他们整个医学培训期间。

Across their entire medical training.

难怪没有医生觉得我的嗜睡是个问题，或者追问过任何细节。

No wonder no doctor thought my sleepiness was an issue or asked any follow-up questions.

发作性睡病有五个不同的症状，单独看似乎完全不相关。

Narcolepsy has five distinct symptoms that, on their own, seem completely unrelated.

过度嗜睡，即使睡了一整晚，也会感觉像连续醒了四十八小时。

Excessive sleepiness that can feel like you've been awake for forty eight hours, even after a full night's rest.

夜间幻觉、睡眠瘫痪、睡眠中断，有时还有猝倒，就是在强烈情绪下肌肉失去张力。

Nighttime hallucinations, sleep paralysis, disrupted sleep, and sometimes cataplexy, a loss of muscle tone with strong emotions.

这就是为什么我这次演讲没有用幻灯片，因为我怕自己会把遥控器掉在地上。

Which is why I don't have slides in this talk because I was afraid I would drop the remote.

我从来没有走进医生办公室把这些症状一起列出来，因为我不可能知道它们属于同一个问题。

I never walked into a doctor's office and listed them all together, because there was no way for me to know they belong to the same story.

就像我没办法知道我的疲劳和别人不一样。

The same way there was no way for me to know my tired was different.

但我们每五个人中就有一个人，疲劳感是不一样的。

But for one in five of us, our tired is different.

虽然发作性睡病可能很罕见，但据估计，百分之二十的人有睡眠障碍。

While narcolepsy might be rare, it's estimated twenty percent of the population has a sleep disorder.

从睡眠呼吸暂停到慢性失眠、不宁腿综合征，以及其他悄悄偷走休息的疾病。

Everything from sleep apnea to chronic insomnia, restless leg syndrome, and other conditions that quietly steal rest.

全世界有数亿人疲惫不堪，却未得到治疗，还觉得这样感觉是正常的。

And hundreds of millions of people worldwide are walking around exhausted, untreated, and thinking it's normal to feel this way.

我们被教导要硬扛疲劳，而不是去问为什么。

We've been taught to push through exhaustion instead of asking about it.

这不是懒惰的流行病。

This isn't an epidemic of laziness.

这是诊断的失败。

It's a failure of diagnosis.

我们总是忽视有睡眠障碍的人。

We dismiss people with sleep disorders all the time.

我们以为睡眠呼吸暂停只影响脖子粗、下巴方、中年发福的男人。

We think sleep apnea only affects middle aged men with thick necks and square jaws.

但其实任何年龄、任何体型的人都可能得这个病。

But it can affect anyone at any age and any size.

幸运的是，我们现在开始认识到睡眠至关重要，是对身心健康最重要的事情之一。

Now, thankfully, we've started to recognize that sleep is vital, one of the most important things you can do for your physical or mental health.

当你睡够了，身体会默默完成奇迹，修复细胞、平衡激素、清除大脑里的毒素。

When you get enough sleep, your body performs quiet miracles, repairing cells, balancing hormones, clearing toxins from your brain.

睡眠是创造力诞生的地方，是记忆归档的地方，也是潜意识自由发挥的地方。

Sleep is where creativity is born, memories are filed, and the subconscious gets to color outside the lines.

睡眠是生产力的引擎。

Sleep is the engine of productivity.

良好的睡眠习惯固然重要，但对于我们五分之一患有睡眠障碍的人来说，光靠良好的睡眠习惯并不能治愈疾病。

Now, good sleep hygiene matters, but for the one in five of us living with a sleep disorder, sleep hygiene alone isn't a cure.

再完美的睡前流程、再重的重力毯、再香的薰衣草喷雾，都没办法让你晚上保持呼吸道通畅。

No perfect bed time routine, no weighted blanket, no lavender spray on your pillow will keep your airway open at night.

因为如果问题是神经性的、结构性的，或者生化层面的，没有医疗干预，你的身体就要付出代价。

Because when the problem is neurological, structural, or biochemical, without medical intervention, your body pays the price.

除了脑雾、工作效率下降，还有疲劳驾驶的危险，长期来看，如果睡眠障碍一直没被诊断出来，它会悄悄从内到外摧毁你的身体，引发炎症，加速衰老，导致胰岛素抵抗，还会增加心脏病、中风甚至阿尔茨海默病的风险。

Aside from brain fog, loss of productivity, and the dangers of drowsy driving, over time, when sleep disorders go undiagnosed, they silently break the body down from the inside out, fueling inflammation, accelerating aging, driving insulin resistance, and raising the risk of heart attack, stroke, even Alzheimer's.

这不仅仅是累。

This isn't just exhaustion.

这是对健康、专注力和寿命的慢性侵蚀。

It's a slow erosion of health, focus, and longevity.

但这也是一个身份认同的问题。

But it's also an identity issue.

直到我被诊断出嗜睡症，我才成为一个完整的人。

I didn't become a whole person until I was diagnosed with narcolepsy.

在那之前，我的人生不是在工作就是在睡觉。

Before that, was working or sleeping.

中间什么都没有。

There was nothing in between.

但经过治疗后，世界对我来说变得鲜活起来。

But with treatment, the world came alive to me.

颜色变得更鲜艳了。

Colors got brighter.

我感受到了完整的情绪。

I felt a full range of emotions.

我开始有了自己的爱好。

I started having hobbies.

我找到了自己的声音。

I found my voice.

在确诊发作性睡病之前，我从不觉得自己有创造力。

Before my narcolepsy diagnosis, I didn't think I was creative.

在治疗的这八年里，我写了两部试播集剧本，写并出版了一整本书，成为了主题演讲者，还在全国性的媒体上发表过文章。

In the last eight years of treatment, I've written two pilot scripts, wrote and published a whole book, became a keynote speaker, and had articles published in national outlets.

在确诊之前，我觉得自己的世界特别受限。

Before my diagnosis, my world felt extraordinarily limited.

现在，我的能力没有上限。

Now, there's no limit to my capacity.

所以，把这当作你的唤醒信号、你的许可、你的重新开始，也是你真正的警钟，让你不仅去审视自己的睡眠，还要关注白天的状态。

So consider this your activation, your permission slip, your reclamation, your literal wake up call to question not just your sleep, but how you feel during the day.

如果哪里不对劲，就去寻求帮助，要求答案，去看睡眠专科医生。

If something is off, ask for help, demand answers, see a sleep specialist.

这不仅是为了你的健康，也是为了那个等待被唤醒的想法、项目、关系，以及那个版本的你。

Not just for your health, but for the idea, the project, the relationship, the version of you that's waiting to wake up.

因为我希望你过上最精彩、最美好的生活，充满色彩、好奇和敬畏，活得热烈而清醒。

Because I want you to live your biggest, most beautiful life, full of color, curiosity, and awe, wild and wide awake.

所以我想问你，你的疲惫是不是不一样？

So I'm asking you, is your tired different?

这是林赛·斯科拉在2026年加州索诺玛县TEDx活动上的演讲。

That was Lindsay Scola at TEDx Sonoma County in California in 2026.

如果你对TED的策展感兴趣，可以访问ted.com/curationguidelines。

If you're curious about TED's curation, visit ted.com/curationguidelines.

今天的内容就到这里。

And that's it for today.

TED Talks Daily是TED出品的播客。

TED Talks Daily is a podcast from TED.

本期节目由TED研究团队进行事实核查，并由我们的团队制作和编辑，包括Martha Estevanos、Oliver Friedman、Lucy Little、Emma Taubner和Tansika Sungarnivong。

This episode was fact checked by the TED research team and produced and edited by our team, Martha Estevanos, Oliver Friedman, Lucy Little, Emma Taubner, and Tansika Sungarnivong.

另外还要感谢Daniella Ballarezo、Christopher Faizy Bogan、Valentina Bohanini、Banban Chang、Brian Green和Lainie Lott的支持。

Additional support from Daniella Ballarezo, Christopher Faizy Bogan, Valentina Bohanini, Banban Chang, Brian Green, and Lainie Lott.

更多内容请访问podcasts.TED.com。

Learn more @podcasts.TED.com.

我是Elise Hu。

I am Elise Hu.

明天我会带着新的想法回来，让你的双脚焕然一新。

I'll be back tomorrow with a fresh idea for your feet.

感谢收听。

Thanks for listening.

歌剧演唱家加布里埃拉·迪·拉齐奥一直热爱莫扎特、贝多芬和维瓦尔第。

Opera singer Gabriela Di Lazio always loved Mozart, Beethoven, Vivaldi.

但后来她发现自己并不了解数千位女性作曲家的作品。

But then she discovered she didn't know the works of thousands of female composers.

这不是要把人从名单上拿掉。

It's not about taking people off the list.

而是要把更多人加进名单里。

It's putting more people on the list.

追寻音乐中缺失的女性。

Tracking down the women missing from music.

敬请收听下一期NPR的TED广播时间。

That's next time on the TED Radio Hour from NPR.

无论你在哪里收听播客，都可以订阅TED广播时间。

Listen and subscribe to the TED Radio Hour wherever you get your podcasts.